Managing the diet, That's my PKU life

August 2018

It has been so long since my last post, I really cant remember now what it was about or when it was with out looking.  Time with a toddler really flies. Days blur into week and weeks into months etc etc and i’m left standing already trying to remember what happen last. mi

Already summer vacation is over in less then 2 weeks and I am asking where did it go? How is it almost September? Summer was dominated by setting up my new daycare business and getting ready for my grand opening September 4th when school goes back in.

We havent really done anything fun yet.

I took the summer off from child care to try to work on my fitness and get my levels down. However here it is with august coming to a close and my levels are still very high and I have not lost any weight.  No pun intended, but it is weighing on  me heavily.

I am really struggling this summer to eat properly. My levels are being so effected that I am having a hard time remembering even to take my medications properly.  The last blood spot I did on August 1st is still sitting on my counter to be mailed in. I think I am probably sitting in the high teens. I have been around 11 to 13 mm/dl for months.

I recently changed my formula this summer to try to make things easier but now that it has increased the amount of servings I need to have , I am constantly forgetting one serving.  I am now suppose to be drinking 4 Loflex LQ Berry and Orange and 2 bettermilk. I have been having the LQ at breakfast and lunch, then 2 bettemilk at dinner.  I am suppose to have one more LQ at an afternoon snack and that is the one I have been forgetting.

In June I was attempting to do the beachbody on demand home work out program 21 day fix. I was also riding my bike and going for walks. I made it 18  days then I fell and hit my head and had a concussion so I had to stop for 2 weeks and ever since its been hard to find the motivation again. I am really low on energy , motivation, self esteem and confidence these days. My anxiety has also been hampering things a fair bit to.

I have been depression free since 2015 but I now know I did have some post partum anxiety when madelyn was 7 months old and it took me almost 8 months to get help for that.

I am managing day by day. My motto is one day at a time. Every day is a fresh start to do better and do what you didnt do the day before.  I really should amend that and make it one meal at a time, or hour by hour. As I always go to bed with a plan to do better tomorrow. I wake up feeling like ” Ok here we go new day!” I have a good breakfast, but then the day gets away from me. Im tired by noon, I skip lunch or eat a high lunch. I miss my work out and then by dinner im to hungry to think or to sit down and figure out my PHE and meal plan. So I wing it and make a fast dinner of rice.

Really i know what I need to do, I should  : Wake up ,  drink some water, make mads and my  breakfast, drink my formula, clean the kitchen, then do a home work out or go for a walk or bike ride, then come home and do my meal plan for the day on how much phe and stick to it. I really need to stop napping during the day to or watching TV.

Oh the if, ands, buts, shoulda , coulda wouldas!

What do you do to manage the day to day of your PKU? Have you developed any tips or tricks that help you stay on track. If and when you fall off track what do you find helps bring you back?

I want to hear from you. Post a comment below or visit my new facebook page and leave a comment on there.

 


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2 thoughts on “August 2018

  1. Have you ever been successful with meal prepping for the week? I did that last year for my daughter and it was awesome until her phe increased and levels became uncertain and then I gave up. Im going to try again this year. Good luck getting in shape Ive failed at that this summer too!

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    1. I have never been sucessful with meal planning on paper. What I want to eat changes by the time I get to the menu. My mom use to make meal plans for me and I hated them for the main reason I had no choice in what I was eating. Now I usually plan as I go. I also have trouble with meal planning and prepping food ahead of time because most of the low protein foods do not keep well once prepared.

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