Managing the diet, That's my PKU life

March 12th 2013 12:41 am

Well its my Friday! night 5 of 5 . In some ways its been getting easier. I def dont have trouble staying awake on shifts like I was but I was struggling very badly with sleeping during the day to the point ive been feeling sick. I have been getting headaches and nausea.  by Saturday I was getting so frustrated I just wanted to cry. Cole came in to the room and hung some comforters over our windows and curtins , and rubbed my back till I drifted off. I have tried melatonin, homophatic pills, tea, baths, eye masks, ear plugs and everything else.

Sunday my best friends drove over on their way home to edmonton from disney land , and spent the night so buy the time I got home I was full of adrenaline and excitment , we watched movies and had a pancake breakfast, and I stayed awake till 1 pm . Then I fell alseep naturally and slept soundly till 8 pm! cole even cleaned the house, made food, watched TV , painted a wall and all this house work and I didnt hear a thing.

Today I got home and fell alseep naturally again and slept till 3 . I have been up since.

I woke up soooo hungry and craving a pasta salad. I have not been eating very much at work on my shifts cause its hard to eat at night for me but i am trying to make it a habbit. I dont eat all day because I am suppose to be sleeping. I eat a snack at 1 am, usually fruit and some special k crips. Then I eat a low protein bagel and my bettermilk at 5 am , as my breakfast. I dont eat again till I wake up for dinner with cole. So my daily intake has been very low and I have not had very much of an appetite.

So tonight I made a big pasta salad with low protien Aproten Rigatini, Mushrooms, onions, peppers, garlic, tomatmoes, 1 tbs corn , 1 tbsp peas and mircle whip to bind it.  This is one of my favorite meals but I have not been eating it lately cause its really high in calories. But since I had not eaten since 1 am and I had eaten very little it all worked out and it tasted sooooo good!!!

I am thinking my level that I sent in on sunday will be alot lower and this one this week to. My level from march 1st came back today and it was 8.3 Thats after being away for a week and many meals out and lots of sushi. So its better than I thought but I have been defiently been trying to get it down again. I am assuming it should be under 5 for the next one.

My intakes have been :

Night shift 1 : March 1st: 520.5 mg phe / 1567 calories

Night Shift 2 : March 2nd : 371.5 mg phe / 1701 calories

Night shift 3 : March 3rd : 417.5 mg phe / 1752.5 calories

Day off : March 4th : 335.mg phe / 1928 calories

Day off : March 5th : 561 mg phe / 1861 calories

Day off : March 6th : 480.5 mg phe / 1362 calories

Night 1 /5 March 7th : 326 mg phe / 2101 calories

Night 2/5 March 8th : Blood test done – Weigh in = 178.4  283.5 mg phe / 1292 calories

Night 3/5 March 9th : 382.5 mg phe / 1652 calories

Night 4/5 March 10th242 mg phe / 2130 calories

Night 5/5 March 11th : 277 mg phe / 1307 calories.

The cambrooke foods I ordered have been a big help to have things on hand and pre made. I have not had any time for baking but I am hoping to on my days off maybe not tomorrow but tuesday.  I loved the bagels. I feel in love with the bagels and cinnamon spread!!  I have not tired everything yet as one of my bags of  bagels and Artisan bread came opened in the freezer package. Also I ordered Butterscotch Cookies but they sent me Peanut Butter Chocolate chip ( YUCK!!) I have emailed our rep and he is working on getting it all fixed up so that will be nice!

Other than that not alot new. When we where in Vancouver I bought some of the new maddys muffin mixes, the banana and the cinnamon so I am planning on baking some muffins for my next rotation.

Oh I have also been going to the gym before I start at work . Cole goes to bed at 9 so I leave and head to the TCC and get there for 930 work out for an hour before I come in. Also my work has a small little gym that I can use on weekends since the TCC closes at 9. This week I went twice and walked once and went to yoga. I have re signed up for yoga for march and signed up for Curcit and yoga twice a week in April! Also my work starts their softball team in late april. :) I am looking forward to that. I also might be starting horse back ridding lessons this spring too! Trying to make time to make sure I keep active while I am working!

So thats all for now!

Take care everyone!


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