You know those moments when you should be sleeping and you are so very much passed exhaustion but your brain just wont shut off? Thats my morning so far.  Worked a night shift last night and am also working one tonight. My body aches mostly my arm and shoulder, my eyes hurt and are heavy I would really love to be able to get comfortable but my mind just keeps going in circles.

You always think of the most random stuff when your brain wont shut of. For example, this morning I am thinking of disaster situations and how I would survive them with PKU.  Like what If we where on a plane and it crashed some where remote and we where stranded for a very long time. What would happen after I ran out of my formula if we even where lucky enough to crash with our luggage. What could I eat ? how would i manage not being able to contact my clinic for advise. How could I get buy and how long would it be before I started to feel it?

OR what if there was a natural disaster and we lost all power, where cut off from the world and I ran out of resources, formula and help from my clinic . Like if there really was an apocalypse and the world was all fire and ice , chaos and destruction.

Really makes one wonder and fear. I can understand why they are people who hoard supplies and shelters just in case.  Could you even do that with PKU? most of the low protein foods have a shorter shelf life, alot of them need to be pre  made or cooked. Formula is so expensive and covered by the government so it is give out diligently and only in 3 month supplies, and with items like these and so precious it would be hard to stock up when you have to use what you have when you have it.

What would you do if you got lost in a forest or stranded, how would you survive if you could not eat nuts, meat, animals,  or if you dont know the phe in bark , fruit and grass?

am I the only one who really spends time thinking about all these what if situations? are they really relevant and worth worrying about. I am sure for the short time in a temp situation , and in a situation where formula was not available nuts or other small sources of protein would be appropriate. Id rather eat something slightly higher  then to  die of starvation. But where do you draw the line? if you know something is going to make you so sick to the point you almost wish you would die rather than having to eat it?  How long can someone with PKU survive lost in the wild? would you give in and eat meat , animals or hunt? or fish? I personally know my body cannot handle it and how sick i feel when I eat something only slightly high scares me immensely to think about eating high protein. Let alone the worry of brain damage. But who knows how one would think in a life or death situation faced with hunger and starvation.

So you see my over tired and under rested mind is running away with wild scenarios. That make me consider living off the land as much as possible and learning basic survival skills. I dont even no how to start a fire. Let alone what leafs, plants and wild fruit are safe.

I am looking forward to growing alot of my own veggies this coming spring and summer and living a life less dependent on processed, canned, GMO, chemically grown and un nutritional foods. I am going more green and organic.  Last summer when we moved to kamloops we didnt have to by any vegtables because my mother in law has a garden over an acre in size and she grows just about everything . She has taught me to make soups can foods, preserve and freeze foods for winter and I am learning more about gardening.  I feel proud of this and am happy. I feel better about my carbon foot print and am learning to recycle and compost as well.

Other than my low protein foods formula and things like crackers, cereal , rice cakes, and condiments we eat pretty healthy and natural! Even coles meet comes from his parents farm. This year they had a steer and pigs. Next year they are adding chickens and turkeys, Cole has been fishing way more this year as well.

Well my eyes are getting more and more heavy and harder to keep open, writting down my thoughts that have been circulating is hopefully going to help me get some sleep. Think I may go for that bubble bath to relax even more.

Thanks for listening to my rambling today!

Best wishes,

xoox Amanda