PKU Book Project

New Project

I am working on a new PKU project and I am looking for  individuals interested in sharing their personal PKU stories . I have made a request on my facebook page and contacted some community friends whom I think would be interested. However I am still looking for many more participants from the following categories :

1: Non PKU parents of Elementary school children who have pku,

2 : Teenagers with PKU

3: Post Secondary students with PKU ( college, university) 

4: Adults on diet with PKU

5: Adult off diet with PKU ( or recently/ returning to diet) 

6: Older Adults with PKU who where taken off diet. ( over the age of 40 ) 

7: PKU mothers who have had a MPKU pregnancy.

8: Men with PKU

9: Siblings , close friends or spouses of someone with PKU

10 : Medical professionals who treat PKU , like nurses and dietitians.

If you fit any of these categories and are interested in sharing your story or would like more details please  email me at amandacosburn@gmail.com There is a lot more spaces available.  I am looking for at least 5 or 6 for each group.