I am working on a new PKU project and I am looking for individuals interested in sharing their personal PKU stories . I have made a request on my facebook page and contacted some community friends whom I think would be interested. However I am still looking for many more participants from the following categories :
1: Non PKU parents of Elementary school children who have pku,
2 : Teenagers with PKU
3: Post Secondary students with PKU ( college, university)
4: Adults on diet with PKU
5: Adult off diet with PKU ( or recently/ returning to diet)
6: Older Adults with PKU who where taken off diet. ( over the age of 40 )
7: PKU mothers who have had a MPKU pregnancy.
8: Men with PKU
9: Siblings , close friends or spouses of someone with PKU
10 : Medical professionals who treat PKU , like nurses and dietitians.
If you fit any of these categories and are interested in sharing your story or would like more details please email me at amandacosburn@gmail.com There is a lot more spaces available. I am looking for at least 5 or 6 for each group.
