Low pro food / cooking

My Pizza pops.

I get asked alot about my “pizza pops” Its a recipe I have been using and making for about 8 years. Its also my go to low protein food. Every time I have a baking day I always always make 1 or 2 batches. I could say its my favorite low protein food that I make my own. I rely heavily on them. They are quick and easy to. I have shared the recipe before but I will share it again.  It is not one of my own but one that I adapted. The recipe I follow is from the cambrooke foods recipe section. The wheatstarch dough. It is such a universal recipe and can be used for many many items. such as the pizza pops, pizza, apple strudel, buns and more.

For the pizza pops I break the dough off in to handfuls of dough and form into balls. I then flatted the balls, and I spread 1 tablespoon or Ragu over the circle of dough. Then I add 1 or 2 tablespoons of Dayia cheese ( my favorite is the pepper jack its sort of spicy) depending on your tolerance you can add more or less or omit for low protein cheese. Then I add mushrooms, peppers, onions and garlic. just a little of each. I fold the dough over and press down the edges. Forming the pocket. If you add to much filling when you fold them over, it will fall out or seep out when baking.  I then place them on a cookie sheet or pan and bake for 20 mins, I coat with melted becel margarine for slight color otherwise they are very white. cooking time will vary depending on how big the pops are. I try to make 6 big ones a batch but I can make the smaller . So when cooking them I test the dough with a tooth pick.

My old friend Amanda J  ( the other pku Amanda) discovered if you put garlic plus seasoning in the dough before baking  , they hold flavor and color more and it tastes great!

To serve I like to heat mine in the microwave on high for one minute. They tend to be a bit harder once you freeze them to soften them up I put a teeny bit of margarine on them when I heat them up and they soften right up. I like to eat them plain just like that, or dip them in something. I have dipped them in mashed up avocado, or ranch dressing or even in my soup. They are great alone and very filling. Or as part of a meal.

Here is the cambrooke wheatstarch dough recipe below, and some photos of the batches I made today.

 

Ingredients

  • 3 1/2 loosely filled cups (350g) CBF Wheat Starch
  • 1/3 cup (60g) Metamucil®
  • 1 1/2 tsp (6g) yeast
  • 1/2 tsp (5g) salt
  • 3 tsp (15g) baking powder
  • 2 Tbs (30g) sugar
  • 1 1/4 cups (275g) warm water
  • 2 Tbs (16g) vegetable oil
  • 1/2 cup (115g) non-dairy liquid creamer, warmed

Oh also I don’t follow the directions on the original recipe.  so what I do do is add all the dry ingredients to a mixing bowl. Then in a liquid measure I add the liquid and the oil. I heat in the microwave on high for one minute, stir and add to the dry ingredients. Then I stir it quickly, with a tablespoon. I find a table spoon works best because you can scrap off any build up. Its harder to do with a wooden spoon.  The dough does stiffen. Once all the ingredients are combined and there is no more powder in the mixing bowl I take it out  onto the counter and kneed. After kneading I place back in the bowl and break off handfuls as I prepare each pizza pop.

Other alternations I do is,  For the  non dairy creamer I use almond milk or so delicious original coconut milk. I also use 2 tsp yeast instead of 1.5 tsp. For oil I use canola oil or olive oil.

I hope you enjoy this recipe as much as I have. I would love any feedback from anyone who tries it and hear what you think!

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Low pro food / cooking

New product alert

as many of you may know I use mio to flavour my bettermilk formula. as well as some of the flavours of the nestle disani and crystal lights that do not contain aspertame. all of these squeezes or liquid water enhancers are made with surculose. they have no aspartame no protein no calories.  surculose can not be broken down in the body and is excreted through urine. well now there is a new product and nee flavours available that are pku safe. they are made by powerade. I found them today at my local grocery store.  I purchased the mixed berry and orange. they are cammed x ion powerade zero drops. + electrolytes.  per drop they have 0 calories 0 protein and only contain sodium and potassium. they where around 4 dollars canadian each. I am currently on my dinner break at work. I am drinking my bettermilk with the mixed berry. tastes just like cotton candy. I enjoy them and the variety they bring to my formula. look for them in a store near you. they work great with the mte amini acid mix and add ins as well.

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Low pro food / cooking

My PKU Kitchen

I have my kitchen set up to best manage my PKU. The kitchen is the heart and soul of the management of PKU.
When you walk into my kitchen you know who out of cole and I spend the most time in it.

I have 2 pantry’s one for cole, and one for me. Mine is packed with all my baking goods and low protein foods.

Over my the microwave I have a stack of PKU Cook books, my recpie binder, my pku food list binder . I have bowls of fruit and a bowl of shallots, onions and potaotes. under the microwave is a stand alone counter full of all my baking sheets, measuring cups and spoons. Above the microwave is 3 rows of shelves that hold my formula, my sports bottles and my straws. Along the microwave itself is all my MIO’s and flavours for my bettermilk.
My stove is covered with seasoning, next to my stove is all my cooking utensils. You follow along the shevles and you will find crock pots, pressure cookers, canning pots, blenders, toasters and various appliances. including my yonanna soft ice maker. I also have 2 bread machines and a fruit dehydrator.

My scale sits under the medicine cabinet. It use to be a china cabinet it has glass doors and all my medications and vitamins are there. With my scale and more appliances.
My kitchen flows in a way that when I am cooking or baking everything is right there ready for me. I like having my things seperated. I get ask alot why I do not intergrate my low protein products into the rest of the kitchen and in with coles food. we use to do that but this works so much better for me and feels much more organized. I spend alot of time in the kitchen, specially in the fall .
My favorite thing to do oddly enough is to open the windows, turn on the music and bake or cook away for hours. I find it so relaxing. Sometimes though when I loose motivation its harder to get into the kitchen and really focus , but once I do im on a roll , baking enough to last weeks . I even have my own small deep freeze downstairs for my baking and cambrooke foods products.
Learning my way around my kitchen and being comfertble there has really helped me to manage my pku and maintain my levels. It is such a necessity.
I dont always follow recipes, I dont always use a cook book. Sometimes I try new things, I imporvise or I search what I am looking for on various websites. My favourite is cooks.com, Then I modify it to make it lower in protein and something I can have. I have found many of my favourite meals and dishes this way. I may not weigh or measure, I eye ball a lot but I know what I can and canot have and am trying to keep an eye on my portion sizes. I do not recommend managing your pku this way. It is best to weigh measure and record. So you can look back when you get your levels and see what you did or what you can change. As you get older is harder to keep up with that, so I recommend not falling off track and understanding how important it is to stay consistent. If you can master this, you will be a master of your PKU and it will be a valuable life lesson to carry with you!

Now off to my PKU kitchen to do some much needed baking! Happy fall everyone!

Low pro food / cooking

Trying something new..

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so my last soup did not turn out at all. That is ok though , it was after all my first attempt!

Tonight I wanted to try again after looking around online and talking with a friend from work. So this morning cole and I went grocery shopping and I came home to try another pot.

I baked a sweet potatoe, pumpkin and butternut squash in the oven for an hour,

mashed them all up, added 4 cups so delicious coconut milk, 2 cups organic chicken broth, sage from my garden,

1 cup brown sugar, 2 tsp cinnamon, and some fresh rosemary and basil.

i m slow cooking it in a pressure cooker with out the lid. I also caramelize some onions and garlic and added them in.

I have been taste testing it this time and also have gotten Cole to taste it and his friend Brad. Both have said its not bad and they would eat it.

 

I just tried a few tea spoons. Its pretty good to me. I will freeze it in portion sizes for work this week. I also need to make 2 more loafs of bread and a batch of pizza pops. That’s my plan for tomorrow as well as canning my pears!

Fall has defiently re motivated me to get back in the kitchen. I find it so relaxing to open up the windows, turn up the tunes and turn on the oven!

We have company over tonight to so while I was making the soup I also made us all dinner. Cole did some BBQ 16 oz t-bone steaks from his moms cow, and I made mashed garlic potatoes, roasted asparagus with lemon, garlic and onions, and broiled mushroom caps filled with honey, garlic, onions and my dayia cheese. Dinner was fabulous . Now to enjoy and relax with our company. Just wanted to share my adventures in the kitchen today.

 

All the best,

 

Amanda

 

Low pro food / cooking

Low protein Cooking!

Well finally found some motivation to get back in the kitchen this week., Must be the cool crisp fall air that is inspiring me to bake and have new warm meals for work. I am starting the night line again at work so wanted to make sure I had plenty on hand to eat.  So I did some more harvesting from my garden , picked some fresh pears and wow they where so sweet! I made 2 loafs of low protein bread and today tried my first low protein peanut butter and banana toast. I was not a fan of the PB,but a friend told me to try mixing it with honey. I will try that next time. I’m thinking I will try a PB & J sandwich. My sister in law is a bee keeper and had her first batch of honey , she gave us a jar and it is amazing so had to make some fresh bread to enjoy it with. There is nothing I love as much as baking bread, the smell it makes in the house and some fresh toast!! Yummyy!! 

Tonight I decided to try my hand and making some home made soup to take to work.  I found a pumpkin curry soup recipe on-line and modified it to make it more low protein. 

 

I use 2 cups of so delicious coconut milk

1 tbsp cinnamon, 

2 tbsp curry

1 tsp coriander

3 bay leaves

2 tsp black pepper

1 small pumpkin baked and mashed up

1/2 cup diced tomatoes 

1 hole medium white onion

simmered for an hour. 

Am taking it tonight in my Thermos so haven’t tried it yet but it smells fantastic!!  Tomorrow on my day off I am going to try to make butternut squash soup and maybe tomato vegetable. I also have to can my peaches! 

SO busy day but great to be in the kitchen again! What are some of your favourite fall low protein dishes to make? 

 

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Low pro food / cooking, Managing the diet

The Holiday season is upon us!

With the holiday season quickly approaching us, there has been much talk about how to keep family meals PKU friendly. Thankfully with all these new low protein foods and aces to treatments , the PKU diet is becoming more varied and its now more than ever possible to make low protein holiday dishes.  My family and Cole’s family have always made me feel included at family meals, and unlike some I love getting together at the holidays and look forward to all the amazing food! Below I will post what I usually eat at each holiday along with some low protein ideas . I will work on a recipe section to follow. 

Thanksgiving and Christmas  : Mashed potatoes, candied carrots , yam, sweet potatoes, squash, turnips, all vegetables,  egg less dairy free coleslaw ( mother in law makes mine separate and uses miracle whip. ) Corn, peas, Brussels sprouts, salad. I make my own low protein bread, or pumpkin pies, This is also a good time for the low protein carrot cake or zuchinni bread you can find on the cambrooke foods website.  cranberry sauce, or apple sauce .  I love making my pie with the cambrooke mix quick or wheatstarch crusts. Also I love sugar cookies and shortbread! I have my own sugar cookie recipe I will post at at a later date. I also have a butterscotch cookie one I love! 

Halloween/ Easter or Valentines Day: most hard candies are low in PHE or PHE free! My parents always sorted through my candy when I was younger, as I got older I learnt what candies I could have and which to avoid. My favourites where : Rockets, Popyee candy sticks, lolly pops, gum drops, jujube, jolly ranchers, cinnamon hearts, Jelly beans,  Gummy bears, star-burst, fuzzy peaches, and most clear or fruit flavoured hard candies.  NO CHOCOLATE!  though now we do have low protein chocolate! Vitaflo makes chocolate Easter bunnies, and Christmas avant calendars. 

 

BBQ summer ideas : Though summer ends this weekend I wanted to include BBQ season under holidays, as most kids are on summer holidays. it is also a time for travel, friends, family, road trips, and of course out door cooking, camping and summer sports. even fairs!! At our summer fairs, circus or PNE/ playland I usually get corn on the cob, candied apples, cotton candy, ice cones, sherbert icecream, pop corn and other low phe options available. However I could go on an on about BBQ. I did do a previous post in the summer with more detail so be sure to check that out too. . i will quickly list my favorite BBQ meals. 

Corn on the cob, grilled pineapple, grilled apples, vegetables in tin foil with spices and honey, grilled carrot fries, asparagus with garlic and lemon. Baked potatoe or sweet potatoe,portabella mushrooms with avacado. For low protein we now have the country sunrise spicy or mushroom buger mix, as well as the chicken nugget mix and the hot dog mix. They are so easy to make and all it requires is oil and water! Or you can go with many many pre made options by cambrooke such as the brooklyn dogs, camburgers, buns and more!

I know I am leaving alot out, but I wanted to be short and to the point to generate ideas and to give you all ideas on what you can do with each. I do not let my PKU take way my love of cooking, baking and trying new foods! i am always looking at what other people eat and thinking, how can I make that suitable for me? my favourite holiday foods are always Christmas! i love mashed potatoes with either carrots or turnip mashed right in! I love butter nut squash, yams and spaghetti squash with brown sugar and cinnamon. There are so many options and different ways to cook each! 

yum! All this food has me getting hungry! must be lunch time! 

I cant wait for christmas baking, cooking and canning! I love cole’s grannys  apple butter! I look forward to christmas goodies and all the canned goodies or garden goodies from Coles family! 

Low pro food / cooking, Managing the diet

Eating out with PKU

One question I get a lot , when educating others about PKU and the limitations of the low protein diet is : so I guess you cant eat out at all huh?

My answer: Yes I can!

 

You see, I know my body and I know my PKU , I know how higher phe foods make me feel, and I know what to do if I do eat out. I know what my good foods are and what foods to avoid. I have been doing this for a while now I joke with them lol. as I am 27 years old.  Sometimes I know the exact phe in most foods I eat or at least if they are  high or low.  I know most parents of young children dread eating out and have to bring the scale or book with them. It is harder when you are younger that’s for sure.

I do enjoy going out every now and then. Its usually for a special occasion, a nice treat, a date night with Cole or out with friends and family for something different. I stick to the restaurants I know the best, that will accommodate me or have menu items I know I can have. If I am going somewhere new, I research it first. I check it out on-line , see if they have a menu and read the reviews to determine if they might accommodate me. Other times I call ahead.

I usually always get the same thing when I eat out and have my order down pat ” Mashed garlic potatoes, no gravy but butter is fine, and whatever your seasonal grilled vegetables are. Can I get it all on one plate instead of 2 small side dishes? ” Sometimes I order a drink to. Either a strawberry daiquiri or margaritas. My favourite is a Bellini. Otherwise I stick to water .

I tend to gravitate towards more family restaurant, bar/ grills , and sometimes pubs.  I don’t like to eat out at pubs to much because they don’t usually serve mashed potatoes. So I end up getting sweet potato fries or a salad. So If I go to a pub I usually go for lunch.

Some of my favourite restaurants when I lived in Victoria was,  moxies classic bar and grill. I just loved there hot skillet of garlic mushrooms!  My top favorite though was a local hidden gem , My Chosen Cafe. It is a beautiful country restaurant. Cole and i went there enough we knew some of the staff and most always got to sit in the patio by the fire place.  The food was real home made food, with really big portions. I never left there hungry. Because my order is unusual I usually end up with the smaller side portions. At My chosen all portions are huge! Sometimes I got mushrooms or sometimes I got the grilled veggies that included cauliflower, carrots, broccoli and the traditional favourites. sometimes even squash and asparagus. Whatever was in season that time of year. The drinks where so thick and made with real berries. The potatoes where not instant and everything was perfection! Every time I go back to Victoria I Make sure to go there at least once!

I can also eat at Denny s, white-spots, and other chain places. Sometimes If I have a low day or a few low days I splurge and get a rice dish.

Here in kamloops we have been to the westsyde pub, where I get sweet potatoes and fries. WE have been to the haulston , they have made me a veggie rice pilaf with no eggs or meat, and they have also done potatoes and corn  or other veggies.  We have been to Crush lounge, for my birthday we went there and i splurged on a mushroom rice pilaf. We also go alot to original joes. I get potatoes and broccolini ( baby broccoli )  there or a thai sweet chilli vegetable rice bowl. With no chicken or meat. They hold the almonds and the other sauces they normally use. Actually we where there last weekend.  We have also been to chapters, though the food was terrible I had potatoes and veggies there.

I also sometimes splurge on my most favourite dish, sushi! I am a regular at Argioto sushi. I always get the avocado roll or the yam tempera roll. I DO NOT recommend eating sushi or rice dishes when you  eat out with PKU unless you have a very high tolerance or your clinic and dieticians say its ok. These are things I started to cheat with when I was bad and went off track with my PHE and diet. So every now and then I treat myself.  It is not safe for everyone and please dont eat them just because I do!  I myself even need to cut back,, specially if I want to keep my levels low enough for pre conception than I have to stop all together! I use to eat rice all the time!! and way to much. I was addicted to it and my levels suffered and so did my brain.  I have cut all rice from my diet at home and if i ever eat it its when I eat out as a special treat. But I do not recommend this at all for anyone else !! Its a bad habbit I am working on breaking. In fact I have only had sushi once in 3 months and it was yesterday while we where out and i needed something quick.

After not eating it for so long I can really feel the difference in my body and how it effects me. I think this will be my deterrent in the future to not try it again.

If in doubt when eating out, ask to speak to the chef, call ahead or when all else fails stick with a salad! I personally think salads are boring and I get tired of them but when eating out the chefs try to make them special by adding dry berries, avocado, fruit or new dressings.  I had a fantastic salad here in kamloops at a salad bar in sahali, it had apples, avocado and dried cranberries or strawberries. it was very filling! I had a sweet onion dressing on it. I normally stick to ranch light home style but I wanted to try something new.  I can also get some great salads at places like subway.

The only restaurant I have been to that was not accommodating was the macaroni grill in Victoria, but I think it was a matter of them not understanding why I needed alterations or substitutions or maybe it was that one day, one chef or server because we went back for a friends birthday before we moved and they where more understanding and able to find me something!

I also like denny’s for breakfast sometimes , I get the shredded hash browns with maple syrup and they fry up onions, cherry tomatoes, and mushrooms on top for me. I also get a OJ or apple juice when I am there. Lunch they make a skillet or roasted potatoes and vegetables topped with avocado, and for dinner I tend to get mashed potatoes, corn and apple-sauce. I also can have salads there, non dairy smoothies, and sometimes if my tolerance allows, white toast and jam!

So to all those who ask me if I can eat out , yes I can and I do enjoy to eat out! You can to with preparation, research and a good understanding of the PKU diet.

 

 

 

Low pro food / cooking

Sandwiches, Sandwiches,

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Well last weekend at the seminar I had my first ever sandwich, and I brought home a loaf of cambrooke homestyle bread. Its the first #Lowprotein bread I have ever had that I can stand non toasted. Most of the #Lowprotein bread is crumbly, tough, hard and can only be eaten toasted. So I am so excited to finally have a bread I can eat as sandwiches . You have no idea how exciting this is for me and how convenient its been this rotation of my night shifts.  I  have been experimenting with different ways to fill it and what toppings to use. The first night I had a lettuce, onion, cucumber and tomatoes sandwich with miracle whip. The second night I ran out of lettuce so I brought 2 slices of bread to work with me and a tupper wear with some toppings. I toasted the bread and used miracle whip, a cambrooke swiss cheese single, cucumber, onions , salt and pepper!! so good!!

Last night I had lettuce, pepper, onions, swiss cheese single, and alfalfa sprouts and brought the same tonight.

You see this is a pretty big deal to me! I still remember box lunches as a kid. I had “cracker sandwiches” with jam and butter, applesauce, fruit snacks and my “pink” phenyl free formula in a thermos of Troll or Disney , maybe little mermaid and lion king.  My formula was pink because my mom flavoured it with nestle strawberry quick.  I was not aloud outside to play until all my lunch was eaten, and sometimes If I didn’t like it I would miss a hole lunch hour and play time. I was teased because of my lunches and not sharing . Then this one time in grade 1  , while all the other kids where playing outside, I hit my thermos over with out the lid on and my pink milk spillt all over the “pod” of desks I was sitting at. I remember how thick and filmy it was. as well  how bad it stunk. The duty monitors helped me clean it up with paper towels and they had to call the teacher. I was horrified . When all the kids came back in from lunch hour,  the room stunk so bad and everyone was asking what that smell was. The teacher had to tell them my “special milk spilt” and they had to clean out there desks cause some of my milk spilt on there rulers and erasers. They had to throw them out.  Needless to say I cried. The rest of my early elementary school memories are foggy. After my parents divorce, I  changed schools in grade 3.  To this day if I run into people that I went to school with in grade 1 they ask me if I still drink that “stinky pink milk” and they called me the pink milk girl. Some of them even ask me why I had to drink that milk anyways.

So needless to say, taking lunches to school was traumatizing and inconvenient. I stopped taking lunches all together in highschool and was cheating so would eat  vegetable sushi or rice and even chow main from the mall.    later  on with the high level symptoms and my hole stint with not eating,  I skip breakfast and lunch all together. Only  eating when I got home from school. I also was pouring my milk down the drain by then too.

It was not until I grew up and started working and later in  college , that I began to take lunches again. I also started eating breakfast again after I  was admitted to hospital and didnt have a choice.  Taking lunches as an adult was even hard to because I have to set a day aside for baking and cooking for the week, if I do not than I dont have good choices to take to work and end up taking higher foods. Soup was easy to take but higher in phe, least the ones I like are.

So, having these sandwiches on night shift has been so cool! I love them and they taste great. I am out of bread though so tonight will be my last one until I have some extra money for a #Lowprotein food order.  There are alot of pre made foods I am wanting to order this time around from cambrooke , to make my life easier and not have to worry if I don’t get my baking day.

I really love how far low protein food has come thanks to companies like cambrooke foods. They really make the diet easier , well when you can afford them that is. I still dream for the day when I have unrestricted access to all the foods. To feel normal just being able to pull something out of the freezer or fridge and not have to prep and bake everything from scratch. TO have more variety of foods.  Its weird to think , but I dream of a day where I can have a deep freeze full of #Lowprotein food , and not have to rely on lower phe regular foods , and fruits and veggies to fill me up. I want to be able to go to the freezer pull out a loaf of bread, cambrooke camburgers patties, corny dogs, low protein chicken nuggets, pitas, muffins, bagels and more . To have them taste like real food and to enjoy food!

These sandwiches are just the beginning!

 

 

Low pro food / cooking, Managing the diet, News

PKU medical Treatment Coverage in Canada.

There has been alot of discussion lately regarding coverage of our low protein medical foods , and formula across Canada. Every province seems to be very different.  Despite our reputation for universal care in Canada, we are lacking in the treatment of PKU. Though British Columbia has a faling grade on the report card for access to treatments.  As i mentioned in my post about the seminar I attending this past weekend, Ontario is now providing coverage and aces to KUVAN and Saskatchewan is rumoured to be following next. 

Kuvan was approved my Health Canada in 2010 and is being used in many countries around the world and even some provinces here in Canada. The BC Children’s clinic is currently using it in the treatment of children in a study. Also there is the 106 study of its effects on depression , anxiety and cognitive functioning. 

in 2012 Canadian PKU and Allied Disorders put together a summery of the coverage in Canada. Nicole Pallone has graciously shared that list with me and it as follows: ( This list does not include KUVAN Or LNAA therapy. ) 

 

British Columbia :

Any formula recommended by clinic dietician is covered for anyone with valid Provincial
Health Care; shipping is covered for patients not located in Lower Mainland. No low
protein speciality food coverage. Product available from the Special Product Distribution
Center (located within BC Children’s hospital). $40 monthly stipend for low protein foods available to those on welfare.

 

Alberta:

Formula and variety of speciality foods are covered for anyone with valid Provincial
Health Care, shipping is not covered. Items are stocked within hospital. Cambrooke
Foods products are available to patients, orders placed through clinic and shipped to
door. Currently, “new” CBF items are not covered.

 

Saskatchewan:

Formula and approved foods are covered for ALL patients with valid Provincial Health
Care. Patients order formula directly from Speciality Food Shop and low protein foods
from National Food Distribution. Shipping is covered for all orders. Adult patients are
referred to AB or MB for follow-up care, although still receive formula and food from SK.

Manitoba :

Formula is covered to anyone with valid Provincial Health Care, shipping covered to
those not living in clinic area. Patients are responsible for ordering foods directly from
manufacturer or 3rd party; clinic does not stock/order foods. Allowance is provided by
Children’s Special Services for speciality foods. (up to $180/month for ages 1-12 years
and up to $250/month for ages 12-18 years) No allowance for adults (18+ years of age)

 

Quebec :

Formula and variety of speciality foods are covered for anyone with valid Provincial
Health Care; shipping is covered for those not able to pick up from CLSC clinics, located
throughout Quebec, orders are processed at time of patient request to National Foods.
A $1500 annual allowance to order Cambrooke Foods. Product is delivered to CLSCs and
patients are required to pick up same day.

 

Ontario:

Formula is covered for anyone with valid Provincial Health Care. Many low protein
products are covered (as approved by the Special Advisory Committee), and available
through the Speciality Food Shop, http://www.specialtyfoodshop.com. Speciality Food shop is
also available to non-Ontario patients with a metabolic disorder. Shipping is free within
Ontario – Out-of-Province & express shipping charges apply.

 

New Brunswick :

Formula and variety of speciality foods are covered for anyone with valid Provincial 

Health Care, shipping is covered. Speciality food coverage is limited to staple items only
(bread mixes, flour, pastas) and shipping is covered.

 

Nova Scotia:

Formula is covered for anyone with valid Provincial Health Care, local patients are
required to pick up and for out of area patients, shipping is covered. Staple items are
available (pasta, baking mixes, cracker toasts, rusks) Patients can order other products
from National Distribution through clinic, but are responsible for charges.

 

Newfoundland
and Labrador:

Formula is covered for anyone with valid Provincial Health Care up to age 18 years,
shipping is covered. Only 2 formulas have been approved for coverage (Phenylfree &
Phenylade). Staple items (pasta, bread mixes, pizza shells, Ener-G cheese) are available
to patients up to 18 years of age and shipping is covered.

 

Prince Edward
Island:

There are no PKU clinics in province, but patients are seen by regular dieticians and
family doctors; clinic visits in Nova Scotia. Formula is covered for anyone with valid
Provincial Health Care up to age 18 years. There is no specialty food coverage, patients
are able to order speciality foods from Nova Scotia clinic but are responsible for all
charges.

 

As you can see we had alot to do to obtain universal standards in Canada. It is my dream to see coverage for all treatments across Canada. So we are fighting. One province at a time. 

 

 

 

Low pro food / cooking

BBQ- PKU Style

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I have heard many people with PKU Stress about the summer weather and BBQ season approaching us.  Stressing about what to eat on the BBQ however for me I do not worry. I love the opportunity to grill out doors in the summer months and on the fire when camping.

there are so many great ways to make low protein BBQ dishes.  Above are photos from our Dinner tonight.  My Low protein dinner tonight is shishkobobs made with mushrooms, peppers, strawberries, apples and tomatoes.  Sprinkled with olive oil and roasted pepper seasoning, then coated with alfalfa honey while on the grill.  Secondly I grilled a portabella mushroom with Dayiah cheese and pineapple grilled with cinnamon and brown sugar.  And I finished of the dish with 1 Cup low protein cambrooke sticky rice , thai sweet chili sauce and applesauce!

Normally I do sweet potatoes on the grill with a veggie basket.  When I make a grill basket I chop up veggies into wedges into a glass bowl and sprinkle them with oil and seasonings, then wrap them in tin foil and put them directly on the grill.

Another thing I like to do is cut up carrots , potatoes and asparagus into “fries” with oil and lemon spice and lay them on the top shelf of the BBQ.

I have never felt left out at a BBQs cause not only do I have these dishes I can make, but BBQs usually always mean my favorite corn on the cob,  fruit platters, vegetable platters , juice and freezes or Sherbert.  I have also made my own potatoe salad its basically mashed potatoes with raw onions, peppers, celery and spices mixed with miracle whip.

Then of course thanks to Cambrooke foods there are more options for low pro BBQ food, such as the cambrooke camburgers and buns, corny dogs, and other pre made meals or chips and cookies.  As well the country sunrise chicken nuggets, hot dogs and burgers. I make my own buns though with the wheatstarch dough recipe. much better texture than the pre made buns, they always taste to tough to me.

To finish off a good BBQ there  is nothing like a nice tall glass of Lemonade and some ice!

Yes, I love BBQ weather and I am looking forward to trying some new meal ideas and more fruit on the grill this season!

So Bring on the sun and the heat and pull up a chair along my pool side :)