Low pro food / cooking

cambrooke eggz omelet

One of my go to breakfast meals when I was pregnant with my first daughter back in 2015 was a cambrooke foods eggz omelet and pku perspectives mushroom burger mix “sausages” I ate it almost every day. This baby has been a bit different as has my tolerance been so. So I have not been able to enjoy it as I wanted to. I am approaching the 3rd trimester and my tolerance is finally climbing and so is my ability to enjoy some old favorites. So today I finally tried my hand at an omelet again.  I have share my version of the cambrooke foods eggz recipe many times but i have seen the question come up a lot on social media again so I thought id take the opportunity so share how i get the consistency right for me again.

I mix 1/2 cup eggz mix with 1/2 cup Almond milk or coconut milk . ( Whatever I have on hand at the moment) I stir it well with a fork to work out all the lumps and really mix it well.  Then i use a spoon to spread it out in a circle on my pan. Lightly oiled with olive oil. I cook it until it comes away easily from the pan.  I add my ingredients of choice with some dayia or earth island cheese to the center. I flip one side over the ingredients to fold it in half then cook it on both sides until it begins to brown. After it should slide away easily from the pan onto your plate!

For the “sausages” I mix 1 /4 cup pku perspectives mushroom burger mix with 2 tsp oil and 4 tsp water. Then I use my hands to shape them into the form of “sausages” and fry them in the same pan as the omelet at the same time.  You can also use the new cambrooke foods burger mix as it tastes just as good and easy to work with . i just dont happen to have any at the moment.

I always change up the ingredients that I add to my omelet based on how much phe I want to use. sometimes I add baby spinach and salsa but today I just used my go to top list. Which I have shared below.

2019-04-30 08.06.03

 

 

 

Indigents i added to the omelet pictured above :

9 grams cherry tomatoes – 2 grams phe

21 grams mushrooms – 18 mg phe

3 grams garlic – 5 mg phe

12 grams onions – 4 mg phe

11 grams earth island vegan cheddar cheese shreds. –  4 grams phe

 

plus :

1/2 cup eggz –  12 mg phe

1/2 Cup Enriched Almond Milk – 40 mg phe

1/4 Cup mushroom burger mix – 12 mg phe

 

For a total of : 97 mg phe

I usually top with maple syrup, or sweet chili sauce or salsa depending on how much phe I want to use up. OR if i am needing extra calories then i add the maple syrup and season to taste with salt and pepper!

Serve warm and enjoy!

Low pro food / cooking

Low Protein Rice bowls

Lately I have been making my own version of some low protein rice bowls.  Since my tolerance is growing a bit each week I am experimenting with adding more variety and more veggies. I am currently able to eat 500 mg phe and I leave most of it for dinner as that is when i am the most hungry.  Dinner has always been my biggest meal of the day. I find that eating the most at dinner helps me sleep better and not wake up nauseated or hungry.  For this reason some of my dinner posts that I share may be to high in phe for some so please feel free to modify. I just make these up as I go based on how much phe I have left to play with.

My rice bowl that I posted to my facebook page last night has been getting noticed and i have been asked to share my recipe so I am happy to do so.

2019-04-29 18.03.22

Low protein PKU Friendly Rice Bowl ( Buddha bowl)

140 grams Dietary Specialties Imitation Rice – 17 mg phe

6 grams Garlic- 10 mg phe

30 grams onions – 10 mg phe

45 grams mushrooms- 39 mg phe

20 grams cherry tomatoes – 5 mg phe

40 grams egg plant – 18 mg phe

60 grams sweet potatoes / yams – 54 mg phe

82 grams avocado – 80 mg phe

2 tbsp thai sweet chili sauce- 12 mg phe

salt and pepper to flavor.

total:  245 mg phe .

Chop veggies and roast in a pan with olive oil and seasonings.  I used garlic plus. Roast at 350 degrees for 20 mins or until sweet potatoes are tender.

At the same time boil a large pot of water. Bring water to boil, add imitation rice. Boil on high for 10 mins. Strain and rinse with hot water as it will be very thick and starchy.

Add Rice to bowl, layer with roasted veggies, Add Fresh avocado and drizzle with Thai chili sauce. Add salt and pepper to taste. Serve hot and Enjoy!!!!

Low pro food / cooking

Baking Day

2018-11-05 07.37.13

 

One of my go to low protein recipes that I have used over and over and over again that it is ingrained in my memory is the wheat-starch dough recipe on the cambrooke foods website.  I have been using this recipe for a good 13 years and never tire of it. Whenever I need to get my levels down or have time to back it is my favorite one to fall back on.

I use the recipe from the website but then I make my own pizza pockets and buns. I divide the dough into balls and either make a dozen wheatstarch buns. Or I roll them out, add Ragu, low pro cheese, garlic, onions, mushrooms and tomatoes then fold over and bake.

I freeze them for the week and grab one of each at lunch . I mash up an avocado with salt and pepper then eat it with the bun or pizza pocket. I reheat them in the microwave and spread the avocado mash onto the bun or just dip them in it. Either way its fabulous and I could live off them.  Today I am all out of avocados so I will just heat them up and add margarine and honey or jam to the bun.

On the weekend I made a garden salad , added low pro Parmesan cheese amd used the cambrooke mushroom burger mix to make fake meat to add to my salad and ate it with a wheat starch bun and jam! It was very filling. I cant seem to just eat the salad on its on and either have to have a bun or toast or a sandwich along with it. I am pretty reliant on carbs and low protein foods . Specially breads.

One of my favorite low protein sandwiches right now is a mock “tuna salad ” sandwich made with jack fruit, pickles, onions, garlic , salt pepper and miracle whip. SOOO GOOD!

Here is a photo from my salad lunch on the weekend. 2018-11-05 11.39.40

Low pro food / cooking, Managing the diet

Glytactin Restore Powder!

2017-04-22 10.53.27

 

Rave review alert! I am a big fan of the cambrooke therapeutics glytactin restore powder and I am about to tell you why!

During my pregnancy in 2015 I had to drink extra bettermilk and was adding mte amino acid mix to my formula and tyrsoine. After giving birth to my daughter my body still wanted the extra formula. But my clinic said I didn’t need it and it could effect my kidneys if I drank to much due to the amount of calcium.

I was in the habit of drinking 2 bettermilk packages and 12 oz of water at each meal so 3 times a day.   My clinic kept telling me about the risks and that it can lead to kidney stones and other side effects so asked me to cut back to 5 packages , which means at one meal , most likely lunch id only have 1 package instead of 2 . This didn’t work for me since its such a small volume so i ended up cutting all the way back to 4 package ( 2 with breakfast and dinner) cutting out my formula at lunch all together.  this left me hungry and had a hard time between meals specially lunch and dinner.

At BC PKU Day On April 1st in Vancouver I talked to our cambrooke rep about trying the Restore powder mixed in water at lunch. Its a formula supplement with out the vitamins and minerals. its mostly the added protein. It has 5 protein equivalents per package.

They came out with this product after having trouble with the restore liquids having gelatin particles and clumping in the bottles.  I was skeptical to try it, as i found the restore had an after taste and was such a large volume since id have to drink multiple ones plus my regular 4 bettermilk. However I am so glad I did!

At first glance it reminded me of the kool aide packages for kids that have the crystals you add to water.

Cambrooke and Stephanie sent me a few samples to try at home. They arrived on Thursday and I got a chance to try them yesterday.

I tried the berry yesterday and it tasted like a light juice or flavored water. It was refreshing and so easy. I just added it to my water bottle and took it on the go with me in my car while maddie and I ran errands.

It did not separate and was not chalky or clumpy. No after taste either.

So I thought id share some photos today while I sample the orange!

 

First I found a shaker cup since I found yesterday stirring vigorously Didn’t make it dissolve well enough: 2017-04-22 10.51.16

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Then give it a good shake , it will get frothy on top but keep shaking. Then let it settle and clear.

 

2017-04-22 10.52.22

 

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Getting clearer :

2017-04-22 10.55.30

Look at that , no chunks or froth ! looks just like juice and thin as water.

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Time to drink:

 

2017-04-22 10.55.03

 

ah refreshing and ice cold ! I cant believe its formula!!!!

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I can totally see myself doing this once or twice a day with my water. I defiently cannot drink all my formula like this add it be way way to  much. I need around 45 grams of phe free protein a day. My bettermilk gives me 30 grams.  Each one of these restore powders is 5 but they do have ones that come as 10 i think.  So doing this twice a day is totally doable. I love how small the packages are. They fit in my purse, Madelyn’s diaper bag, my car and my back pack so I always have them with me. I think I even have one in madelyns stroller for when  I am on a walk !

I totally do not drink enough water on a daily basis and am always dehydrated and thirsty before bed time. So this will really help me up my water intake too!

All in all I am impressed and happy to find something that will fit into my routine with out to much adjusting or trouble.

if this interests you , I really recommend checking it out! Could be great for those on the go and active high energy days, for the sporty kids , to take to school, to work , or after the gym!

Low pro food / cooking, Managing the diet, PKU Photo A Day

May 2nd 2016 #PKUphotoaday

 

2016-05-02 09.40.26

May 2nd 2016
‪#‎pkuphotoaday‬ bottoms up/formula

One of the main treatments of phenylketonuria (pku ) is a metabolic amino acid formula.

It was the first treatment for pku and is essentially a medication. It requires a prescription and dosage is based on body weight.

All of my life I am required to drink this formula 3 times a day
The formula is made up essential amino acids , vitamins , minerals and protein with out the phenylalanine that I am allergic to. My brain and my  body rely heavily on my formula as it is essentially my life support system.

As a child our choices were very limited and my formula was made from potatoes starch . We flavored it with strawberry nestle quick.

Now for the past 3 years I drink this new gmp / whey protein
formula called bettermilk and in flavor it wit Mio water enhancers !
I’m very lucky that I enjoy my formula and have never had issues drinking it. I drink 2 packages in the morning with 16 oz water, 1 package at lunch with 8 oz water, 2 packages at dinner with 16 oz water and each time I pick a different flavor of mio too add. My favorites are the sports , blue and orange!

 

It took me a while to adjust to the different taste and texture of Bettermilk. In fact at first I could not stand it. I switched to it and switched back a few times. But the benefits of GMP and bettermilk made me want to give it another try. It is very good for digestive health and I have always had tummy troubles and struggle with IBS. So it has really helped me.

Many people ask me what it tastes like, I find this a difficult question since I dont have anything to compare it to. So What I can say, is that I love it! It is sort of creamy and is suppose to be an imitation of real milk. It took me a while to adjust to that because it does not have the grittiness of regular PKU Formulas.

So what is GMP?

GMP is a naturally occurring whole protein for the dietary management of PKU . I believe it is made during the process of making cheese . Is the only form of naturally occurring protein that does not contain phenyalaine in a pure form. There is some phenylalaine in bettermilk. Approx. 23 mg per package. So be sure to account for it in your daily intake!

The formula has always been fully funded by each provincial government across Canada.

 

#PKU #phenylketonuria #MPKU #lowproteindiet #dietforlife #PKUAwareness #lowlevels

#Lowphe

Low pro food / cooking

Crazy baking day.

you would think at 8 months pregnant i would start to slow down. Really overdid it yesterday spending the entire day cleaning the house top to bottom. Today I spent 5 hours baking in the kitchen. I have more energy this week now that i am fully recovered from my Norwalk episode.  I was to sick to do any baking before christmas so I have done some for new years!

I even made some regular high protein cookies to help get my intake in easier without being picky over textures and tastes.

Here is what I made today . I even figured out the PHE and calories thanks to help from the new recipe section on how much phe!

 

Here is what I made :
21 coconut oatmeal cookies
( 1 cookie = 122 mg phe/ 241 kcals)

22 peanut butter & Butterscotch chip cookies
( 1 cookie = 156 mg phe/ 132 calories )

18 Cook for love Cauliflower “buffalo things”
( 1 thing = 20 mg phe / 70 calories)

12 low protein taste connection perogies
( 1 pierogi = 19 mg phe / 80 kcals)

Rice krispies were made on christmas eve but included them in the photo as part of my holiday baking!
( 50 grams of rice krispie squares = 55 mg phe / 224 kcals)

total time: 5 hours due to; prep, baking, having to weigh and count phe and calories, clean up and lunch in between!

 

Tomorrow we are going to Cole’s parents home in clinton for her pierogi party and christmas with cole’s brother and sister in law. Since Tracy makes perogies every year i finally made some of my own to take with any enjoy at the party. Most of this is going with us tomorrow to share with the family.

Hopefully my energy continues on a bit longer so i can start baking items for after baby is born!

Low pro food / cooking

Mom’s Famous Christmas Rice Krispie Candy Squares

My mom has always made the very best rice krispie candy squares and she passed down the recipe to me years ago . It is a holiday favorite that I make every year but I just always ate a few squares without knowing the phe and calories.

Now that I am pregnant and tracking everything I was going to avoid making it this year but it’s a tradition I do not want to do with out so I finally sat down and did the math. Hopefully it is correct as I am sharing it with all of you.

The best thing about my mom’s rice krispie candy is how sticky and gooey it is!

Here is the recipe :

1/2 cup margarine  = 0 mg phe / 560 Kcals

400 grams marshmallows =  700 mg phe  / 1400 kcals

6 cups rice krispies = 600 mg phe  / 660 kcals

1 tbsp vanilla extract = 0 mg phe / 72 kcal

Total recipe PHE : 1300 mg phe  /  2692 kcals

Recipe yeilds : 619 grams of wet /warm goodness.

so each gram of candy is  approx : 3 mg phe  / 5 kcals.

So now when I go to cut out the size of the candy I want ,  I will weigh it and times the weight by the 1 gram value!

for example 50 grams of candy would be : 150 mg phe / 250 kcals!

So not its not very low protein but its perfect for me as a treat , specially with my tolerance being so high! Now  to be sure I think I will re weigh the candy once it is hard and re do my math to be more accurate. Will share the new updated totals when it cools. It is currently in my fridge hardening!

 

I cannot wait to dig in! 2015-12-24 16.50.09

Low pro food / cooking, Managing the diet

BC Metabolic Nutrition program moves to National Foods Distribution Center.

Today marks the first day that BC residents can now order low protein food from the National Foods Distribution Center our of Montreal.

Our BC Metabolic Nutrition program is working in partnership with NFDC to expand products available to us! All foods ordered now go through NFDC . The biggest difference is that they have cold ship items! There list is so extensive! They offer low protein foods from all the major low protein food companies!

I have been waiting for this day since our subsidy began! I love the convenience of the pre made cold ship items. Specially now that I am pregnant and back to working night shifts it has been hard to keep up with baking.

So amongst many other BC residents , today i made my first large order! So what did I order? Well I really stocked up ,  , 1 each of all my favorites that I have been missing!

Here is what i ordered:

PKU Perspectives:

Cinnamon roll up mix

ribbed macaroni

mushroom burger mix

Cambrooke foods:

jalapeno cheese singles

potabella spinach raviolli

pierogi

cheese ravioli

french toast bagel bars

bigger bagel plain

bigger bagel apple cinnimon

bigger bagel garlic

cheese pizza

mini pizza pockets

veggie meatballs

tweekz

meadly meals bbq

meadly meals thai

go pockets burrito

go pockets samosa

and I am soo very excited and cannot wait for it to come it! this will set me for months of my night line and hopefully up till my mat leave. Good thing I have a big deep freeze lol.

This just such exciting news and perfect timing. Big thank you to Nicole Pallone, John Adams, the CanPKU advocates and our BC Health Minister Terry Lake for again changing our lives for the better and making this diet totally possible for my babys health! I could not be happier!!

Shipping should take about a week! The cold items are air mailed directly for Cambrooke Canadian Where house and the dry will be shipped from montreal! Yummy! next week is going to be great!

Low pro food / cooking, Managing the diet

My opinion on eating out with PKU.

A thread on one my facebook groups has created some drama and sparked my writers block.

It seems expectations of eating out with diet restrictions have drastically changed over the years.  Many question the rolls and responsibility of corporate restaurant changes when it comes to catering to the restrictions of the partons.

Where I was raised with the notion that If I could not eat off the menu, or could not be accommodated then we simply changed where we were going out to eat. Now a days it seems many PKU families bring their own food or ask the chef to prepare a low protein option. With so much focus on healthy eating, diet restrictions and things like gluten free options and clean eating , how much responsibility is held by the restaurant vs the people?

It seems the normal expectation in society is that it is the restaurant’s job to accommodate. I have very mixed thoughts on this and thought I would share.

These are my own opions are not a reflection on anyone else and not an attack on anyones parenting or how they rasie their PKU Children.

I was raised to believe that ordering off menu meals was rude and insulting to the chef. When you go outto eat you are choosing the place you wish to eat based on what you know about it, previous experiance or the reputation. You are going out to enjoy a meal prepared for you and for something diffrent. Usually for a special occasion too.

I was always taught that with my PKU I had to be careful of what my options where and ask the protein content if I did not know it. When I was younger we would call a head and ask if they served mashed potatoes or vegetables and what they where made with. Then we would look up the phe amounts before going. Now if you have a smart phone you can do so in real time.  When we ate out for breakfast I would be fine with either toast and jam or a side of shredded hash browns and an apple juice. This was very easy to do at places like Dennys and or white spot. Nowadays I really enjoy Coras as they have so much fresh fruit and toast. Even though toast is higher I would accomodate for it in my day .

Lunch is als pretty easy when eating out. Most fast food places, and many pubs and family spot will offer a garden salad and fries or sweet potato fries. Though I know longer eat at fast food places, I remember as a kid going to Mcdonalds and my mom would count out my fries and I was aloud 10 fries and a salad.

I have dinner down to a science. ” I will have a side of mashed potatoes, seasonal vegetables, no gravy,plate margarine is fine, and can I get that all on one plate instead of 2 side plates?”  When I count I count the potatoes a bit higher then what is listed to accommodate for any milk products.

I haven ever asked a restaurant to cook my own low protein food or brought my own food with me. To me that teaches one self to be entitled. It also brings more attention then needed. Asa  child I would have been embarrassed to cause such a fuss. It would make me feel different and shining a big spotlight on me.

I felt much more special when I could find something on the menu that I could have. It made me feel special and excited to feel some what “normal” .

Restaurants that have things I can order are my favorite places to eat and I can going to return again and again. If I cant eat their then i am simply going to go somewhere else.

When I am invited out to dinner with friends and family I call the place a head of time and ask them to see a menu . This way I am not asking the host or my friend who may not know and not inconvenience them on their birthday or special occasion.  and the majority of the time I can find something to order, If not I eat a head of time and just order a drink . Then I simply do not go back. Now my close family and friends know me well enough that they ask me first what places i can eat at at and we choose somewhere together from that list.

Eating out does not have to be such a hassle. It is a luxury for enjoyment and a choice we make. It is not a necessity. I do not expect special treatment. am i sometimes annoyed by the accommodations and options for those who chose to eat gluten free, yes. Do i wish I had more options and choices yes. But I do not let it take away from my experience and the social of eating out with friends. It does not effect my day to day life. It does not have a direct impact on my diet, my self esteem me health or my PHE levels. It is simply a social activity I enjoy from time to time and wish other could do the same.

When did we all become so entitled? In today’s society we should be more thankful for the changes and choices to restaurant eating and celebrate the small victories like being able to find something that already compliments my diet.

Again this is just my opinion. I am not a PKU parent, I am adult with PKU . I have lived this life and these experiences. This is from my point of view from what I have learned and lived over the years.

PKU has never taken away from my experiance or stopped me form enjoying a meal out. It does not have to do the same for anyone else.

Not to mention the violations and suits a restaurant could face by preparing food not from their own menu. It i snot always their choice and they must follow the law, permits, and have license to protect. There are to many variables on what could go wrong when a chef is working with unfamiliar food products. It is unfair to expect that of them. Or to put that situation on them. Please consider them and their business when making your decisions and expectations.

Low pro food / cooking

Cooking day.

unnamed

Been in the kitchen all day making what I call lunch foods. Even thought I be trying each for dinner tonight lol.

I did a lot of deep frying today. I really need a deep fryer. I am using a pasta pot filled half way with vegetable oil. Heated and then checking them temperature with a meat thermometer.

Today I made Buffalo things ( deep fried Cauiflower) The recipe comes from Cookforlove.org and I mention it in a previous post.

2015-01-31 15.00.12

you can find the recipe at the following link :

http://cookforlove.org/buffalo-things/

I also made Salad Rolls. An Original recipe by Nicole Pallone. I followed her recipe exactly . Though I attempted to deep fry them the rice paper went black , they burnt and fell apart. So then I tried broiling them in the oven. As you can see they are a bit burnt. Next time I am just going to leave them alone. I have had them before at a BC PKU event and just loved them. They are a lot quicker and easier to make then I first thought they were.

2015-01-31 14.45.26

Nicoles Recipe : 

Here is the spring roll recipe i am going to make tomorrow!

Low Protein Spring Rolls
Ingredients:
120g shredded or julienned carrots
130g chopped cabbage (I used coleslaw mix)
175g bean sprouts
100g chopped water chestnuts
16g chopped green onion (that is all I had!)
Salt & pepper to taste
2tbsp sesame oil
1pkg mung bean vermicelli noodles
1pkg rice paper wrappers (label said 0.4g of protein each)
Fresh basil – one leaf per roll
Optional – your favorite hot sauce!
Sweet Thai chilli Sauce
Directions:
Lightly sauté the first 5 ingredients in the sesame oil, literally just a few minutes to soften and combine the flavours.
Add salt & pepper as desired. Set aside.
Drop the rice noodles in boiling water per package directions until soft, then drain and rinse with cold water.
Put a plate on your kitchen scale. Set up a pan/bowl of hot water large enough to submerge each rice paper wrapper.
For each spring roll, submerge a wrapper until soft and pliable then place on the plate on the scale. Add 30 grams of the
vegetable mixture and 15 grams of cooked rice noodles. Wrap per the package instructions and voila! Serve with plum
sauce or sweet chili sauce and let the whole family enjoy.
Nutritional Information:
Each spring roll is 3.18 exchanges or 47.7mg of phe. This includes the wrapper which, at 0.4g of protein each was
counted as 1.33 exchanges (20mg of phe).

and then I made some low protein taste connections Perogi’s

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The recipe is very simple. I boiled 2 cups water, 2 tablespoons vegetable oil, and 2 cups taste connections multi purpose baking mix. I stirred all together very quickly. Then used my hands to make sure I was getting all the flour.  I let it cool and I made my filling which is country sunrise low protein mashed potatoes, green onions, garlic and a little dayia cheese shreds. I ripped off handfuls of dough and worked it till it was soft, patted down into a circle, put a teaspoon of filling on , folded it over and then deep fried it till they floated.

All in all it was a sucessful cooking day. All thought I am a bit disappointed with the appearance of my salad rolls. I am totally going to have to attempt them again soon!

Please feel free to share this post. If you try any of the recipes I would love to hear what you think!