BC Residents and news, CanPKU, News

February 24th

Live Twitter updates during BC PKU DAY 2013 yesterday. 

  1. snap shot from #BCPKUDAY2013 . my phone is dying so thanks for following my tweets on the event. photos to come later!

     

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  2. @canpku press conference at #BCPKUDAY2013 to raise awareness & ensure patients get the treatment they deservepic.twitter.com/Mc6o4irtlN

     Retweeted by Amanda Cosburn

     View photo

  3. Honoured to introduce internationally renowned #pku expert Dr. Barbara Burton. #BCPKUDAY2013 http://www.canpku.org/pku-news/190-2-harm-or-protect …#bcpoli

     Retweeted by Amanda Cosburn

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  4. Dr. Burton says we can do beter for #pku patients. I agree!#BCPKUDAY2013 #bcpoli

     Retweeted by Amanda Cosburn

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  5. DR.BURTON was the first doctor to treat PKU with kuvan ever!!#BCPKUDAY2013

     

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  6. Dr. Barbra Burton is our next speaker on optaimizing outcomes in pku! Very exited to here from this expert! #BCPKUDAY2013

     

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  7. I am so happy and enjoying #BCPKUDAY2013 this year! Great experience :)

     

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  8. Just had a fabulous visit socializing with pku families over a low protein lunch atv@BCPKUDAY2013

     

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  9. @canpku at press conference at the #BCPKUDAY2013 to raise awareness & ensure patients get the treatment they deserve pic.twitter.com/TghTf7CBKg

  10. DR.Syliva stockler head of the bc children’s clinic is our next speaker of the day. #BCPKUDAY2013 #bcpoli

     

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  11. Congratulations Wyoming on there new coverage of PKU formula! Signing later this week. Big news from #BCPKUDAY2013 #BCPOLI

     

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  12. So interested in karis maternal pku talk. Never met a pku adult with a pku baby! #BCPKUDAY2013 #bcpoli

     

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  13. are you following my live tweets for #BCPKUDAY2013 on Twitter? ?

     

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  14. Kari”s pku story is so familiar to me! Love hearing from other adults#BCPKUDAY2013 #BCPOLI

     

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  15. @christyclarkbc I have PKU! Its time you policy “famlies first” includes famlies like mine. #BCPKUDAY2013 #BCPOLI

     

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  16. @pmharper can myslef and other PKU patient’s get a re tweet to support #BCPKUDAY2013 today at chan center BC children’s hospital. #bcpoli

  17. Kari kilmer @canpku #BCPKUDAY2013 . Would love to ask her all my questions! Inspiration! #bcpoli pic.twitter.com/efGM7R8x7y

  18. So excited to here guest speaker kari kilmer pku adult and mom to a pku little girl. #BCPKUDAY2013 #BCPOLI

     

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  19. RT @canpku PKU FAMILIES ASK @christyclarkbc TO INVEST IN BRAIN PROTECTION STRATEGY!!! #BCPKUDAY2013 #bcpolihttp://lnkd.in/Pwu3P2 

     Retweeted by Amanda Cosburn

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  20. It is time to extend BC Premier @christyclarkbc commitment to “Families First” to PKU families #BCPKUDAY2013 #BCPOLIhttp://www.canpku.org/email_premier/ 

     Retweeted by Amanda Cosburn

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  21. I am working to host a pku walk a thon in kamloops on june 1st for@canpku to raise funds for #bcpkuday2013 #bcpoli

     

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  22. Today’s the day. #BCPKUDAY2013 is about to get started! #bcpoli#raredisease

     Retweeted by Amanda Cosburn

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  23. Today is the Canadian PKU and Allied Disorder’s BC PKU Day!#BCPKUDAY2013 Visit the CANPKU website to learn more!http://ow.ly/hToWp 

     Retweeted by Amanda Cosburn

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  24. Arrivd in Vancouver yesterday&droped off @canpku policy doc to Min@DrMacDiarmid constit office #bcpoli #bcpkuday2013pic.twitter.com/iaqBRIq3e7

     Retweeted by Amanda Cosburn

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  25. @canpku president and me at the #BCPKUDAY2013. Shaping up to be a great day! #bcpoli #raredisease pic.twitter.com/7gdKzT9D7K

     Retweeted by Amanda Cosburn

     View photo

  26. Looking forward to hear Dr. Barbara Burton speak about#pku today at #BCPKUDAY2013#bcpoli #raredisease

     

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  27. Today’s the day. #BCPKUDAY2013 is about to get started! #bcpoli

     

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  28. almost there. thank you cole for driving us and coming to the event with me every year! happy this year to have… http://fb.me/271mKnHzh 

     

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  29. we are on our way to bc pku day dont forget to follow me on twitter today hashtag #bcpkuday2013 for live tweeting during the event.

     

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  30. Dont forget to bring your pennies for pennies for pku #bcpkuday2013penny drive!

     

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  31. Good morning tweeters! We are on our way to #BCPKUDAY2013. Are you excited as I am. Thank you @canpku for hosting this wonderful event!

     

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  32. I will be live tweeting during tomorrows event with the hashtag#BCPKUDAY2013. Follow me on twitter at @Project_PKU

     

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  33. 2 new blog posts tonight! Be sure to check them out!

     

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  34. made it to vancouver at 12:00 pm had lunch, went to clinic had a good check , stopped to get low pro food now at the hotel :)