Live Twitter updates during BC PKU DAY 2013 yesterday.
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@Paul_van_Berkel@NPallone@_elgo@HypeVancouver@SteveLemky thanks Paul so far its been amazing ! -
I posted a new photo to Facebook http://fb.me/1XxpC2Nqa
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snap shot from
#BCPKUDAY2013 . my phone is dying so thanks for following my tweets on the event. photos to come later! -
@canpku press conference at#BCPKUDAY2013 to raise awareness & ensure patients get the treatment they deservepic.twitter.com/Mc6o4irtlNRetweeted by Amanda Cosburn -
Honoured to introduce internationally renowned
#pku expert Dr. Barbara Burton.#BCPKUDAY2013 http://www.canpku.org/pku-news/190-2-harm-or-protect …#bcpoliRetweeted by Amanda Cosburn -
Great group shot of all participants from
#BCPKUDAY2013pic.twitter.com/D1noRHFWIh cc@Project_PKU@_elgo@HypeVancouver@SteveLemkyRetweeted by Amanda Cosburn -
Dr. Burton says we can do beter for
#pku patients. I agree!#BCPKUDAY2013#bcpoliRetweeted by Amanda Cosburn -
Dr. Barbara Burton speaking about pku at @BCPKUDAY2013pic.twitter.com/1GQTw594JV
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@NPallone@project_pku@_elgo@hypevancouver@stevelemkyHave a great BC PKU Day 2013!#BCPKUDAY2013Retweeted by Amanda Cosburn -
DR.BURTON was the first doctor to treat PKU with kuvan ever!!
#BCPKUDAY2013 -
Dr. Barbra Burton is our next speaker on optaimizing outcomes in pku! Very exited to here from this expert!
#BCPKUDAY2013 -
I am so happy and enjoying
#BCPKUDAY2013 this year! Great experience :) -
Just had a fabulous visit socializing with pku families over a low protein lunch atv@BCPKUDAY2013
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@canpku at press conference at the#BCPKUDAY2013 to raise awareness & ensure patients get the treatment they deserve pic.twitter.com/TghTf7CBKg -
Thank you
@KootenayBill for stopping by#BCPKUDAY2013. Now an honourary Friend of@canpku#bcpoli pic.twitter.com/NKTj1VjgKs -
#BCPKUDAY2013 media release coming up at 11am !#bcpoli -
DR.Syliva stockler head of the bc children’s clinic is our next speaker of the day.
#BCPKUDAY2013#bcpoli -
Congratulations Wyoming on there new coverage of PKU formula! Signing later this week. Big news from
#BCPKUDAY2013#BCPOLI -
So interested in karis maternal pku talk. Never met a pku adult with a pku baby!
#BCPKUDAY2013#bcpoli -
are you following my live tweets for
#BCPKUDAY2013 on Twitter? ? -
Kari”s pku story is so familiar to me! Love hearing from other adults
#BCPKUDAY2013#BCPOLI -
@christyclarkbc I have PKU! Its time you policy “famlies first” includes famlies like mine.#BCPKUDAY2013#BCPOLI -
@pmharper can myslef and other PKU patient’s get a re tweet to support#BCPKUDAY2013 today at chan center BC children’s hospital.#bcpoli -
Kari kilmer
@canpku#BCPKUDAY2013 . Would love to ask her all my questions! Inspiration!#bcpoli pic.twitter.com/efGM7R8x7y -
So excited to here guest speaker kari kilmer pku adult and mom to a pku little girl.
#BCPKUDAY2013#BCPOLI -
RT
@canpku PKU FAMILIES ASK@christyclarkbc TO INVEST IN BRAIN PROTECTION STRATEGY!!!#BCPKUDAY2013#bcpolihttp://lnkd.in/Pwu3P2Retweeted by Amanda Cosburn -
It is time to extend BC Premier
@christyclarkbc commitment to “Families First” to PKU families#BCPKUDAY2013#BCPOLIhttp://www.canpku.org/email_premier/Retweeted by Amanda Cosburn -
I am working to host a pku walk a thon in kamloops on june 1st for
@canpku to raise funds for#bcpkuday2013#bcpoli -
Today’s the day.
#BCPKUDAY2013 is about to get started!#bcpoli#rarediseaseRetweeted by Amanda Cosburn -
Today is the Canadian PKU and Allied Disorder’s BC PKU Day!
#BCPKUDAY2013 Visit the CANPKU website to learn more!http://ow.ly/hToWpRetweeted by Amanda Cosburn -
Arrivd in Vancouver yesterday&droped off
@canpku policy doc to Min@DrMacDiarmid constit office#bcpoli#bcpkuday2013pic.twitter.com/iaqBRIq3e7Retweeted by Amanda Cosburn -
@canpku president and me at the#BCPKUDAY2013. Shaping up to be a great day!#bcpoli#raredisease pic.twitter.com/7gdKzT9D7KRetweeted by Amanda Cosburn -
Nice to see reps from
@CAMBR00KE@VitafloUSA@NutriciaCampresent at our event!#bcpkuday2013 -
Looking forward to hear Dr. Barbara Burton speak about
#pku today at#BCPKUDAY2013.#bcpoli#raredisease -
@christyclarkbc pls help some of BC’s most vulnerable. Support@canpku#BCPKUDAY2013#bcpoli http://bit.ly/Ym0rAC -
Today’s the day.
#BCPKUDAY2013 is about to get started!#bcpoli -
In the truck on our way ! pic.twitter.com/YbR1UeAqr0
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almost there. thank you cole for driving us and coming to the event with me every year! happy this year to have… http://fb.me/271mKnHzh
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we are on our way to bc pku day dont forget to follow me on twitter today hashtag
#bcpkuday2013 for live tweeting during the event. -
Dont forget to bring your pennies for pennies for pku
#bcpkuday2013penny drive! -
Good morning tweeters! We are on our way to
#BCPKUDAY2013. Are you excited as I am. Thank you@canpku for hosting this wonderful event! -
I will be live tweeting during tomorrows event with the hashtag
#BCPKUDAY2013. Follow me on twitter at@Project_PKU -
2 new blog posts tonight! Be sure to check them out!
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Friday February 22nd 2013 http://wp.me/p31sIm-hs
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Friday February 22nd 2013 http://fb.me/MgiCEOjb
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Thursday February 21st 2013 http://wp.me/p31sIm-hq
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Thursday February 21st 2013 http://fb.me/wUX3lGm3
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made it to vancouver at 12:00 pm had lunch, went to clinic had a good check , stopped to get low pro food now at the hotel :)

Amanda Cosburn
John Adams
Nicole Pallone
Paul van Berkel
NPKUA 




























































































































