Baby Number 2 / Maternal PKU journey 2

Trimester 1 blood phe results

Summery of my first trimester blood phe levels. I do my blood dots Mondays and Thursdays.  Mondays I drop them off at the lab and Thursdays i work so my best friend or my husband drops them off for me.  I fast all night before doing them. I shower first thing in the morning to warm up and get my blood flowing.  I then do my blood dot before eating breakfast or drinking my formula. Usually around 730 am.

When I am pregnant I have to drop them at the lab so they can go through the labs “intramail” courier system. I get my levels from Monday back on Wednesdays or Thursdays. I get my Thursday blood results back on Monday or Tuesday.

When I am not pregnant I mail my blood dots in the mail after they dry for 4 hours. They take 10 days to 2 weeks to get the results back.

I was not really on diet when I got pregnant both times. I ate low protein food and drank formula but I did not weigh my portions or track my intake so my portions where getting really big. I ate a lot of rice, potatoes, and high phe foods. Never touched meat and dont plan to ever.

So When I found out that i was pregnant my levels were 14.8 I had been eating a ton of rice.

It took me 10 days to get my levels under 5 . The maternal PKU safe level range is 2-5 mg/dl

 

Here are my results :

Dec 1st – 12.8 ( monthly regular blood dot)

Dec 3rd – 14.8 ( The day I found out)  Intake dropped down to 200 mg phe !!!

Dec 4th – 12.5 ( plasma amino acid blood draw at the lab )

Dec 6th- 11.5

Dec 10th – 7.6

Dec 13th – 5.7 ( In range!!)

Dec 17th – 2.3 ( Tyrosine 54)

Dec 20th – 2.5

Dec 24th – 1.8

Dec 28th – 1.8 ( tyrosine 79)

Dec 31st – 2.4  ( intake increased to 225 mg)

Jan 3rd 2019 – 3.0 (Intake increased to 240 mg phe)

Jan 7th- 4.2

Jan 10th – 4.1 Tyrosine 45

Jan 14th – 4,5

Jan 17th – 4.8

Jan 21st – 3.7

Jan 24th-3.9 Tyrosine 56

Jan 28th- 2.7 tyrosine 50

Jan 31st – 2.5 Tyrosine 43

Feb 4th – 2.6 tyrosine 51

Feb 7th- 2.8 tyrosine 55

Feb 10th – 3.15 Tyrosine 62

Feb 14th – 2.9

Trimester 2 begun at 14 weeks on Feb 16th 2019


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