facebook, Social Media, That's my PKU life

Do what you love.

I am not a professional blogger. I am not even that good. I cant spell well and I make a lot of typo’s. Even when I use spell check it does not always pick up my grammar  mistakes, run on sentences, wrong punctuation or lower case vs upper case mistakes.

I dont charge for content, I dont ask subscribers to pay to follow my blog. I do not advertise. I do not sell advertising. I dont have any sponsors.  I do not know how to do any of that or understand how it works. Much of it I would not want to do anyways.

That being said, I have been writing this blog for nearly 6 years. There have been many highs and many lows. I can go a very long time in between posts. I think I wrote maybe a couple blog post in all over 2017. I have already written more then that in the last few weeks .

I stop for a while, I pick it back up again.

I loose subscribers and followers. You cant please everyone.

I change the look and feel and sometimes the name.

The blog gets a make over when the mood strikes me.

I have written blogs on several platforms over the years, many I stop or give up or delete. This blog I have invested way to much into to delete it and loose all my content. I did have to delete my facebook page ” Amanda Cosburn- PKU Adult and Advocate” with over 800 followers because of a few bad people trying to make my life miserable . But I came back.

I have been PKU Tri-Unity  , Project PKU, PKU Proud, My PKU life,  PKU Amanda and many other names.

I have had, MSN, Yahoo, Tumblr, Hi-5 , Live journal, dear diary, friendster,  myspace, facebook, twitter, pinterest, instagram, google plus and various other social media platforms.

I have memberships and profiles on pku.com pkuboard.info and many others. I subscribe to the listereve and the pku news newsletter.

I have had various websites over the years where I have attempted to have my own pku website or recipe spot.

I created the First groups for PKU on most social media, I created the very first PKU group on facebook as soon as i joined back in 2005.  There was no other groups. Now I admin multiple groups and our first group has over 6000 members world wide.

So why do I keep doing it?

Why do I share so much of my life online?

I didnt meet anyone else like me with PKU till I was over 13.  It was lonely. I have always had my ups and downs. I have struggled and  I have done well.

I figured if by sharing my story, one more person knew what PKU was that would be a positive.

If by sharing my thoughts, feelings, struggles, triumphs and my daily PKU life that someone out there might not feel so alone.  Someone might learn from my struggles and avoid them. That it might help a teen out there like me who struggled, or a PKU women who wants to be a mom. To the person or parent struggling to know they are not alone.

I am not a brand. I am not trying to sell anything.

I am just me. Doing what I love, to help others and to help myself. I write because I like to not because im good at it.

I write out my thoughts to help me think through them and learn from them. I talk things out and I journal. I record so I dont forget and so others have acess.

Anytime someone writes me to say they relate, or they understand it makes it all worth it.

I just want to help.

When I share my blog posts on facebook it is not to get more followers, its because i have a space to write it out in full and long so if anyone wants to read it I dont have to repeat it or summarize it. I share it to start conversations. So maybe I can connect with someone else who is like me , or to help someone else.

I share it reach out , start a conversation or debate. To share education, information, events, latest news and more.

I do it for you and for me. I do it because I love it and it has helped me grow.

I hope it has helped , I know it has helped. I hope I can continue, even if people stop reading.


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