May 2nd 2016
‪#‎pkuphotoaday‬ bottoms up/formula

One of the main treatments of phenylketonuria (pku ) is a metabolic amino acid formula.

It was the first treatment for pku and is essentially a medication. It requires a prescription and dosage is based on body weight.

All of my life I am required to drink this formula 3 times a day
The formula is made up essential amino acids , vitamins , minerals and protein with out the phenylalanine that I am allergic to. My brain and my  body rely heavily on my formula as it is essentially my life support system.

As a child our choices were very limited and my formula was made from potatoes starch . We flavored it with strawberry nestle quick.

Now for the past 3 years I drink this new gmp / whey protein
formula called bettermilk and in flavor it wit Mio water enhancers !
I’m very lucky that I enjoy my formula and have never had issues drinking it. I drink 2 packages in the morning with 16 oz water, 1 package at lunch with 8 oz water, 2 packages at dinner with 16 oz water and each time I pick a different flavor of mio too add. My favorites are the sports , blue and orange!

It took me a while to adjust to the different taste and texture of Bettermilk. In fact at first I could not stand it. I switched to it and switched back a few times. But the benefits of GMP and bettermilk made me want to give it another try. It is very good for digestive health and I have always had tummy troubles and struggle with IBS. So it has really helped me.

Many people ask me what it tastes like, I find this a difficult question since I dont have anything to compare it to. So What I can say, is that I love it! It is sort of creamy and is suppose to be an imitation of real milk. It took me a while to adjust to that because it does not have the grittiness of regular PKU Formulas.

So what is GMP?

GMP is a naturally occurring whole protein for the dietary management of PKU . I believe it is made during the process of making cheese . Is the only form of naturally occurring protein that does not contain phenyalaine in a pure form. There is some phenylalaine in bettermilk. Approx. 23 mg per package. So be sure to account for it in your daily intake!

The formula has always been fully funded by each provincial government across Canada.

#PKU #phenylketonuria #MPKU #lowproteindiet #dietforlife #PKUAwareness #lowlevels

#Lowphe