MPKU Journey!

30 weeks!

Monday night Dec 14th around 9pm I feel very ill with a very terrible stomach virus.  I spent the entire night sick to my stomach. The sickest I had ever been . By 6 am tuesday morning, at 30 weeks pregnant I was having cramps and was dehydrated. After calling my midwife , Cole took me up to the hospital . I spent 8 hours hooked up to IV and non stress test.  I was aloud to go home around 330 pm , only I did not get better. In fact I got much worse and was not longer able to eat.  My symptoms became increasingly worse and by 1030 pm I was having contractions and dehydrated again. So back to the hospital we went and I was admitted to labour and delivery with the un official diagnosis of a gastrointestinal virus called norwalk also know as norovirus. I ended up spending 4 days and 3 nights in hospital hooked up to IV fluids, Anti  nausea meds and pain meds.

I was not able to eat any soild food , wednesday and thursday.  This means Tuesday, wednesday, and thursday I did not make my daily protein intake or calories either.

All I could manage was my formula, water and Orange Juice. Luckily I was on IV fluids the whole time as I could not seem to keep up with the thirst and dehydration.

I had several non stress tests, an ultrasound, lab work and was very closely monitored.   While on labour and delivery I listed to 3 women give birth and heard babies take their first breathes and cries.

Wednesday morning I was moved to 3 west Obstetrics and maternity floor on isolation precautions.  It was incredibly hard day after day to be so sick , worried about how it was effecting my levels and my baby.

I stopped vomiting wednesday afternoon but was still having other symptoms.

Cole came and saw me everyday after work but when he left id cry.  I was having a very difficult time emotionally and was under a lot of stress .

I was finally able to leave my room and shower wednesday night.

We thought id be able to go home thursday, i refused all meds after this point and only aloud the IV fluids as I was worried the meds were making it worse.  My stomach was so hard and distended and the pain was so intense. Just moving or rolling in bed sent pain shooting through my belly. My bowels were very irritated and inflamed.

My vein finally collapsed thursday afternoon and my IV went interstitial. After having it removed I had no symptoms for a few hours and attempted to eat some dinner but then I ended up getting sick just before dinner and was sick till midnight non stop.

Friday I woke up still sore and inflamed but finally hungry. I was able to eat 3 small meals and keep down all my formula.  My symptoms subsided around 10 am friday and I was discharged at 33o pm friday.

As soon as I got home I spent 2 hour in the bath soaking away in the bubbles ! SO happy to be home with my boys. ( Cole and my fur babies)

 

I am happy to say I have now been symptom free for over 24 hours and am feeling more like myself.

While in the hospital they did venous amino acid plasma draws on tuesday and friday so will be interesting to see what they come back as next week..

My last level from before I got sick was the morning of December 14th at the 1150 mg phe came back yesterday at 1.1 mg phe! So My clinic team said when I am able to eat again to aim for 1400 mg phe ( 28 grams protein!!)

because I am still recovering and the food portion sizes have gotten to be too much for me to handle and I do not want to add any more new foods we have decided to add protein powder to my formula.

Today I am 30 weeks and 4 days pregnant. Baby is head down and moving frequently.  After being in the hospital and listening to other mothers give birth it really feels so real now.

At one point I was listening to a women scream in labour for hours! Then all of a sudden it was quiet and you heard a baby cry.  I was really starting to get a bit anxious for this new mother but when I heard her baby cry I cried too.  Cole was there at the time and we kept looking at each other while this women screamed in pain, and Cole looks over at me and says ” this is what we have to look forward to in give or take 10 weeks”  but then we both breathed easier when the baby was born.

I definitely do not want to see the inside of that hospital room again till it is time to meet our little one!!

it feels so soon! I can’t believe december is almost over!!

I have a feeling the next few weeks are going to go by fast .  With Christmas and the Holiday season upon us, then prenatal classes in january!

It is starting to very real that this baby could be here really any time after the new year!!!

2015-12-19 09.49.52

 

 

 


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One thought on “30 weeks!

  1. Hi, my name is Sarah and I have pku as well. I am currently 30 weeks and 2 days pregnant! Right behind you! My pregnancy has been tough as well, especially vomiting so much. It was really difficult to keep down my formula for the first half of the pregnancy. I finally had to get on some meds for it. Just wanted to say Im going through it all too! God bless!

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