MPKU Journey!

Pregnancy Blood PHE Levels.

2015-09-24 11.50.55

Thought it would be neat to see a list of all my blood levels since I got pregnant. I find it comforting and it reminds me that I am doing my very best.

I was not on pre conception diet prior to becoming pregnant so I have a bit of guilt over that. Next time ( if there is a next time) I will rectify that.

Here in BC the range for pregnancy is 2 mg/dl to 6 mg/dl but Cole and I agreed I would try my best to keep them under 4 .

according to my dating ultrasound back in July we conceived June 2nd. I did not find out untill June 17th.  I called my clinic immediately and we began working to get my levels down asap.

Here is how we did :

June 4th : 9.4

June 13th: 11.5

June 17th (the day we found out)  : 10.7

June 20th:  9.0

June 22nd:  7.2

June 25th: 4.82

June 29th:  1.7

July 5th: 2

July 7th: 1.8

July 10th: 2

July 15th: 1.7

July 16th : 4.4

July 18th : 5.2

July 21st: 6.7

July 24th : 5.8

July 27th: 5.19     

July 29th: 4.5

July 31:  5.2

August 3rd: 6.3

Aug 5th:  6.8

August 8th: 5.2

August 10th: 5.4

August 12th: 4.5

August 17th: 2.5

August 20th : 3.4

August 24th : 2.2

August 27th: 2.8

September 1st: 3.2

September 5th : 2.3

September 7th: 2.8

September 9th : 2.3

September 15th: 2.4

September 16th: 3.2

September 18th: 2.7

September 22nd : 2.9

 

 

Latest blood PHE test I did this morning. It took me 5 days to bring my levels down into safe range for myself and baby. I was very lucky to catch it so early!!

As you can see my highest level so far ( after finding out I was pregnant and after dropping them down into range) is 6.8

The few days after finding out I was pregnant when they where over 4 is because I was having trouble getting enough calories in. My appetite has been poor and my portions have been very small. So even though I am bang on with my phe intake my calories where a little low. So we started adding apple juice and mr freeze jumbo freezies to get my calories up. I also could not tolerate any low protein food untll lately. I was so nauseated but not vomiting to much. Just food had no taste and just felt heavy and like glue. It would take me an hour to eat a meal and get it all down. I had to eat really slow. But as of second trimester its getting easier to eat and my appetite is better.

I am only nauseated now when I am hungry or tried, in the car , any motion or strong smells make me gag. I have been having alot of headaches and I am having trouble sleeping. Specially now that I have strained my back.  I tend to always want to sleep on my back when it hurts this much. I have always mostly slept on my left side anyways but now i keep waking up on my back. I have also had a few issues with low blood pressure which made me feel very dizzy and nauseated but its doing better this week.

We have a mid wife appt today at 2 pm. Looking forward to hearing baby’s heart beat again. It is a bit stressful between appts since its hard to know what is going on! I worry about baby growing and developing properly and is baby gaining weight? cause I am not! in fact ive lost 10 lbs since june!

I worry if they will be able to find the heart beat and if its still beating. But after I hear it again all my fears go away!

My next PKU Pregnancy blood profile is due october 5th. This will look at how I am doing with nutrition. If I am getting enough vitamins and minerals and a re check of my iron which has been low.

We have our full anatomy scan and echo on October 13th at BC Childrens and womens health hospital in vancouver , along with our appt with the fetal specialists and 2nd trimester PKU appt. Then our next OBGYN appt is October 15th.

I am still at 350 mg phe and 2150 calories but as soon as my blood phe levels drop below 1 we will start increasing my tolerance.  I am taking 6 bettermilk with 5 grams of tyrosine added to it.

So things are going well and we are happy with the progress! Will update again after our appts!


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