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May 27/ Day 27

27

‪#‎pkuphotoaday‬ ‪#‎pku‬ ‪#‎phenylketonuria‬ ‪#‎pkuawarenessmonth‬
May 27 / day 27

Pku shirts.

What a better way to spread awareness then with a total shirt ?

These are my pku shirts . The white one was one I had made for myself from Vista print years ago.

The orange shirt is from our advocacy campaign to get our Government to cover low protein foods and kuvan. We all wore them to our 2012 events and media coverage . Our camping was a success and we achieved our goal of funding for low protein food in BC!

Health minister Terry Lake rewarded bc residents with a 250 dollar monthly subsidy or 3000 a year ! Our coverage began January 2014!

The black t shirt is the shirts we sold to raise funds and support for Avery ride for pku in June 2014. Avery ride for pku was a ride across Canada by Kevin Dube. His neice Avery was born with pku and Kevin wanted to do something for pku. Kevin road coast coast summer 2014 and raised over 60 thousand dollars for pku! It was a huge success


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