‪#‎pkuphotoaday‬ ‪#‎pkuawareness‬ ‪#‎raredisease‬ ‪#‎pku‬ ‪#‎phenylketonuria‬
May 14 / day 14
Diet records
The only treatment for pku is a life long diet for life . The low protein diet is monitored by our medical team of doctors and dietitians. We have a numerical value of protein that is our daily intake. Each day we must measure and weigh our food. We keep food records to track our intake , protein , nutrition . This helps us to monitor how much phe is in our blood. My daily goals are to be around 70 grams of protein ( 60 comes from my special medical formula ) and under 1700 calories unless I am active. Increased activity means I can tolerate a little bit more. My focus in previous years has been on keeping my protein as low as possible . The less protein I eat the higher the calories are in low protein food. I was close to 2000 calories or more day. Since February I have been focusing on losing weight and being active for at least an hour everyday. I am paying closer to my calories than ever before and trying to find a healthy balance between my sugary low protein foods and my calories. It is a real challenge for me. Here is what my day looks like today. I have not been active yet today so I will be adding my work out later ! This is only a snap of my breakfast and lunch. it was to small to include my dinner. so the calories and nutritional information is a full days worth.