#‎pkuphotoaday‬ ‪#‎pkuawareness‬ ‪#‎raredisease‬ ‪#‎pku‬
May 12/ Day 12

Formula bottle collection:
Evey day of my life I need to drink a medical formula I call my milk. It is essentially a protein drink with out phenylalanine. I have a prescription and need to drink it 4 times a day . The daily dosage is based on your weight. My formula keeps me healthy and provides me with a full intact nurtion with all the amino acids minerals and nutrients I miss from food. My formula gives me 60 grams of protein a day that is phenylalanine free . It keeps me full helps my body stay healthy. The formula is like my life support system. It’s a medication that u cannot live with out . It is very expensive and we rare very lucky that the Canadian government funds our formula since the day I was born . So I have never had to go with out. Unfortunately this is not the case in America and many pku patients cannot afford formula and suffer terrible side effects from not having it regularly.
This is my formula cupboard and supplies . I drink bettermilk m one package per meal and before bed with 8 oz of water. Shaken in a bottle snd drank with a straw. My milk is flavorless so I use mio to give me variety and to make it more enjoyable.