I have been slowly trying to work on a PKU Book project for the past 2 years. It has taken a long halt over the last year as life has many twists and turns. The interest wavered and I did not achieve my goal for submissions and had to put the project on the back burner for a while.
However the time has come to dust off the cobwebs and begin work again. I have partnered with Kay Emerson to help make my dream come true.
This project is so important to me , a goal I have set to achieve and I dream of seeing it become a reality. It cannot do so with out the support of the community and I need your help!
For those of you who do not know about the Book project , or are new to my site. I am working on a collection of PKU personal stories. I have designed a book similar to the ” Chicken noodle soup for the soul” book series but about PKU. I am collecting PKU personal stories ; There are 11 chapters that I am looking for submissions in. Each submission should be no more than 4000 words and must meet the criteria of one of the following chapters. Once I have a suitable amount of submissions kay and I will begin editing and compiling the stories into a collection and will have the book published in hard copy and hopefully e-book files.
The categories are now as follows:
Chapter 1 : ( FULL) we have plenty of stories to fill this chapter.
New Diagnosis. Infants to age 5.
Chapter 2 :
The Early years : Elementary school age
.
Chapter 3:
Teen years. Age 13-18. Transitioning clinics, managing your own diet. Highschool with PKU
* Note this category at this time is empty. We have NO writers!
Chapter 4: College years : post secondary school experiences. ( university too)
Chapter 5:
Adult life , living & working with PKU. Relationships and every day life, struggles and accomplishments.
Chapter 6: Pioneers of PKU : older adults living with PKU, been taken off diet as a child. Age 35 and older
Chapter 7: MPKU personal stories
Chapter 8:
Travelling with PKU
Chapter 9: Family members perspective ( spouse)
Chapter 10 : Kuvan/ peg pal / LNAAS treatment
Chapter 11: Medical professionals who treat PKU
Examples:
* how they first became interested in PKU
* why they treat pku
* treatments and changes over the years
* personal stories
* personal experiences
* the evolution of PKU throughout their careers
* thoughts and feelings
Chapter 12: Non Profit PKU charities
Note: This category has no submissions or anyone signed up. We have NO writers.
Chapter 13: Low protein PKU food and formula company workers.
Chapter 14 :Kay Marie Emerson and Families personal stories.
Chapter 15 : Amanda Cosburn Short Bibliography.
To submit a story, or to if you have any questions regarding this project please contact me at amandacosburn@gmail.com
Again Thank you everyone for your interest and to those who have already signed up or submitted!
Please pass this in and share share share , we need more interest to make this happen!!!
Thank you!
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