Here are 4 new facebook groups created this morning. If you are interested in joining copy and paste the link into your facebook search bar and send the group a request to join.

These groups are only for PKU patients.

New friends and family PKU group coming soon.

Group 1:

Canadian PKU Preconception and Pregnancy Support Group:

For Women with PKU it is recommended that they follow a low protein restricted diet for 6 months prior to conceiving and for the duration of the pregnancy. To prevent damage and mental retardation, maintaining levels between 2-4 mg/dl is considered safest for the women and her unborn baby. This group is for Canadian PKU women who are either thinking about becoming pregnant, who are pregnant or who are already a mom. A place to share experiences, stories, exchange information and ask questions. This is a closed group. All posts are confidential.

this group can be found at the following link :

https://www.facebook.com/groups/1448387172060994/

Group 2 :

Canadian PKU Women’s Only Support Group.

All new Canadian Women’s PKU support group. For Female patients who they themselves have PKU. A confidential closed group to openly discuss anything related to living life with PKU.

This group can be found at the following link:

https://www.facebook.com/groups/216795168510508/

Group 3 :

PKU Men’s Only Support Group

All new PKU Men’s only Support group. A closed private and confidential group for the Men of PKU to talk openly about life with PKU from a Man’s perspective.

This group can be found at the following link:

https://www.facebook.com/groups/420227808123783/

Group 4 :

Canadian PKU Men’s Only Support Group

All new Canadian PKU Men’s only Support group. A closed private and confidential group for the Men of PKU to talk openly about life with PKU from a Man’s perspective.

This group can be found at the following link:

https://www.facebook.com/groups/1427941864112824/

We hope you enjoy these new groups and hope they become a valuable tool in the managment of your PKU life.

If you have an idea for a new PKU group on facebook and would like some help making your idea a reality please feel free to message me for support!

Amanda