PKU Book Project

Still looking for your “Personal Story” submissions.

  1. Attention PKU friends and family, I am still looking for submissions of personal stories for the book I am writing. If you are interested and fit of the categories below please message me or email me . Submissions are due ASAP and no later than the last week of December. Word count is on or under 4000 words. If you need help with suggestions and editing please email me. I would be happy to read it… over and give you suggestions.

    The categories are now as follows:
    Chapter 1 : FULL
    Diagnosis. Infants to age 5. 

    Chapter 2 :
    The Early years : Elementary school age
    * Note: We need at least 5 more submissions for this category.

    Chapter 3:
    Teen years. Age 13-18. Transitioning clinics, managing your own diet. High school with PKU
    * Note this category at this time is empty. We have NO writers!

    Chapter 4: College years : post secondary school experiences. ( university too)
    * Note: We need many more submissions for this category.

    Chapter 5:
    Adult life , living & working with PKU. Relationships and every day life, struggles and accomplishments.
    *note we need at least 4 more submissions

    Chapter 6: Pioneers of PKU : older adults living with PKU, been taken off diet as a child. Age 35 and older
    *note: We need 8 more adults willing to share their stories for this category.

    Chapter 7: MPKU personal stories
    *note : we need 4 more submissions for this category.

    Chapter 8:
    Travelling with PKU
    * Note : we need 9 more here!

    Chapter 9: Family members perspective ( spouse)
    Note: we need 8 more for this category .

    Chapter 10 : Kuvan/ peg pal / LNAAS treatment
    *Note : We need 7 more participants here.

    Chapter 11: Medical professionals who treat PKU
    *Note : we need 9 more dieticians or doctors and nurses for this chapter.
    * how they first became interested in PKU
    * why they treat pku
    * treatments and changes over the years
    * personal stories
    * personal experiences
    * the evolution of PKU though out their careers
    * thoughts and feelings

    Chapter 12: Non Profit PKU charities
    Note: This category has no submissions or anyone signed up. We have NO writers.

    Chapter 13: Low protein PKU food and formula company workers.
    *Note: we need 9 more here too!

    Chapter 14 : Amanda Cosburn Short Bibliography.


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