Do you have PKU? and are you struggling to control your levels? Eat healthy? Exercise? and lead a more active and fit life style? Do you need support with meal planning, recipes, fitness motivation? Than this group is for you.

I have created a group on facebook only for people who have PKU themselves , it is a closed private group so all posts are confidential. It is a great group to seek support, ask questions, give or get advice and make new friends.

We all have the same goals, and we are working together to support one another and to help keep each other motivated. We record monthly weights, measurements and blood levels. You have the option to share before and after photos. We share recipes , meal ideas, health and fitness tips. We post weekly and monthly goals and share our progress along the way. Sometimes we need to vent or rant when we have had a rough work out or loose motivation and it helps get us back on track. Its a positive and friendly environment and we encourage all members to participate.

I have been asked a lot why it is just for People who actually have PKU themselves and have heard a lot of arguments how it might help teach friends and families, but unfortunately that is not our goal. There are many fabulous groups on facebook for our support networks , learning and education opportunists. We wanted this group to be our one place where we can talk to others who are having similar experiences as well as somewhere confidential away from our family and friends. Sometimes we just don’t want to share everything, and some things only someone with PKU will get, on a different level. Also sometimes the topics we discuss are sensitive and make us vulnerable. We share our emotions, our frustrations with diet, weight and fitness. It is for all these reasons that we decided to keep our little group closed and pku only.

However we are accepting new members, so if you are interested and think this group would be a good fit for you, please send the group a request and I will add you. Be sure to check your other inbox in your facebook messages as I will contact you to make sure you yourself have PKU.

The name of the group is PKU health and Wellness Support group. The link is :

https://www.facebook.com/groups/466759290048566/?bookmark_t=group

we hope to see you there!