That's my PKU life

Follow up appointment

so after dragging myself out of bed , after laying awake since 4 am then having a 2 hour nap at 9 am , I woke up and did some computer tasks, checked facebook and then I got a call from my doctors office to come in at 1:45 . So I had a shower and got ready. While showering I noted again how much hair I have been loosing these past 2 weeks.

I went to my doctor appt and my doctor, who is luckily my family doctor from back home in Victoria. I have been seeing him since I was 16 . So I was so happy to hear he moved to kamloops just after I did!

My doctor did not seem very concerned about my iron. What he told me is that my Ferritin is very low, which are my iron stores.  that they should be between 15-80 mg and mine are 5. However my Red blood cells and Hemocrit are normal so at this point I am not anemic. However that could change at any time, all would take is a bleed of some sort, even a cut that wont stop, a nose bleed anything. So I am to take an iron supplements starting at 30 mg and then bump it up to twice a day. I am also going to be taking a B12 that will dissolve under my tongue.

My doctor does not feel that my iron is the cause of all my symptoms and thinks I am slipping back into my depression. Though I mentally don’t feel depressed , I have all the physical signs so he has suggested that I double my dose for a few weeks , see how I feel and than come back.

My doctor figures between the iron, vitamin b12 and the new dose of my anti depressants I should start feeling normal again soon. The iron can take months though.

I also talked to my dietitian again and she has sent me some pamphlets on iron supplements and we just talked about my symptoms and how they have been progressing . If i think about this and when I started to notice a real difference in myself I would have to say it started in September and has gradually gotten worse.

I feel very off. I don’t feel like myself, I feel drained. physically and mentally drained. I am very fatigued, I am having trouble sleeping and could just lie in bed for hours not doing anything and not sleeping. I have no energy, I have no motivation to be active, my appetite has changed, I have gained weight this month alone.  I just feel off and run down. i don’t want to do anything. I haven’t read, or spent time on the computer or gotten out much on my days off I just want to be home resting.

So hopefully this works and I start feeling normal again and like myself again!

Thanks for all the kind words and messages wishing me well. They make me smile :)

 

 


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2 thoughts on “Follow up appointment

  1. Glad you got into your doc and were able to figure it out. I had a similar issue last year, it was my B12 that caused the other levels to be deficient as well. We do not get it in our diet, and I’ve had to supplement before, but I had stopped due to taking Kuvan, and not needing it as much. When we discovered it was low, I did b12 shots for 6 months and now do a daily b12 tablet. It took awhile, but it helped a lot. I hope it helps for you. Also, just wondering about checking for aspartame in your tablet, here in the US I have not found a sublingual (under the tongue) tablet of any kind that doesn’t contain aspartame. It’s not labeled with it because it’s a drug, but my pharmacist told me. Hope you are feeling better soon!

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    1. Thanks Jen, I did not know they could contain aspertame. luckily my B12 is actually ok , it was suggested to me to take it to help absorb the iron supplements and to give me an energy boost while I am waiting for my iron to go up. I will call my health store and pharmacist tomorrow to ask about the aspertame.

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