I have now finalized the lay out, table of contents and a title for our book. However I will not be releasing the name at this time. it will be a surprise!
As many of you know I have extended the deadline to submit your stories to October 20th 2013 . Also the word count is now 4000. I have upped the word count to help make the stories more deep and personal . Id really like you to go in depth and describe your story focusing on the category you have chosen. I want to hear how you felt and what you think. Don’t just tell your story. Explain it. I have also made some changes to the categories again so please read and share with all your PKU friends and family.
The categories are now as follows:
Chapter 1 :
New Diagnosis. Infants to age 5.
Chapter 2 :
The Early years : Elementary school age
* Note: We need at least 5 more submissions for this category.
Chapter 3:
Teen years. Age 13-18. Transitioning clinics, managing your own diet. Highschool with PKU
* Note this category at this time is empty. We have NO writers!
Chapter 4: College years : post secondary school experiences. ( university too)
* Note: We need many more submissions for this category.
Chapter 5:
Adult life , living & working with PKU. Relationships and every day life, struggles and accomplishments.
*note we need at least 4 more submissions
Chapter 6: Pioneers of PKU : older adults living with PKU, been taken off diet as a child. Age 35 and older
*note: We need 8 more adults willing to share their stories for this category.
Chapter 7: MPKU personal stories
*note : we need 4 more submissions for this category.
Chapter 8:
Travelling with PKU
* Note : we need 9 more here!
Chapter 9: Family members perspective ( spouse)
Note: we need 8 more for this category .
Chapter 10 : Kuvan/ peg pal / LNAAS treatment
*Note : We need 7 more participants here.
Chapter 11: Medical professionals who treat PKU
*Note : we need 9 more dieticans or doctors and nurses for this chapter.
* how they first became intersted in PKU
* why they treat pku
* treatments and changes over the years
* personal stories
* personal experiences
* the evolution of PKU though out their careers
* thoughts and feelings
Chapter 12: Non Profit PKU charities
Note: This category has no submissions or anyone signed up. We have NO writers.
Chapter 13: Low protein PKU food and formula company workers.
*Note: we need 9 more here too!
Chapter 14 : Amanda Cosburn Short Bibliography.
Again Thank you everyone for your interest and to those who have already signed up or submitted!
for those of you who have submitted, I have finally reviewed your stories, made some notes and will be getting back to you all next week!
Please pass this in and share share share , we need more interest to make this happen!!!
Thank you!
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