Greetings everyone,

as many of you may know already about my latest project. A collection of personal stories about life with PKU. that I will be publishing into a book. I have been working with a number of people already and have already had many stories come in.

However, I still need way more! Also I am extending the deadline untill October 20th 2013. With hope of preparing the manual script and sending it to a publisher by winter and hoping for publication in the new year.

As I have stated in various posts before, there are 11 categories I am looking for .

Here are the 11 sections I have broken down to. I am looking for a minimum of 6  stories for each section, however I have no set limit for the time being.  :

Section 1 : New Diagnosis  

Examples are : a mothers perspective,
a fathers perspective
the new pku parents.
Section 2 : The Early years ( from a parents perspective) 

Examples being : “firsts” first foods, first clinics, first tests, first teeth ext ect
a growing baby
toddler adventures- raising a toddler with PKU
starting kindergarten 
the elementary years

Section 3 : The Teen years ( written by teenagers with  PKU )
Taking the reins – taking over the diet from your parents.
the diet
cheating
middle school/ high school
friends / relationships

 

Section 4 : The college years – (Written from pku patients)

post secondary education and dealing with diet, door life, classes, social outings ect ect.

 

Section 5 : Adult life – ( ADULTS WITH PKU THEMSELVES!)
 
careers, working, cheating, dating, relationships, marriage, families, traveling, inspirational stories.

 

Section 6 : Maternal PKU ( WOMEN WITH PKU WHO ARE PG OR HAVE BEEN PG )
Stories from PKU moms and their pregnancies

 

Section 7 : PKU Pioneer Adults

Older adults off diet, returning to diet and the struggles they face.

 

Section 8 : PKU Around the world

 

Stories about how treatment differs around the world, and clinics, tracking , foods , policies ect ect.

 

Section 9 : PKU FROM A FAMILY MEMBER’S PERSPECTIVE, SPOUSE, SIBLING OR CLOSE FRIEND) 

Section 10 : Stories from medical professionals who treat or work with PKU.

Section 11 : Treatments with KUVAN , Peg Pal or Large Neutral Amino Acids.

 

Many of these categories are still needing submissions and most categories have 1 or 2 submissions. I am in need or way more submissions for Sections 3 through to 11.  I have no limit to how many stories I will except but I would like to see a minimum of 50 over all.  The most popular sections are 1 and 2 and though id prefear to close those sections now and focus on the others, if you would really like to be apart of this project and submit a story please email me and we will work it out.

The idea behind this book, I have been reluctant to share do to wanting to protect my idea and not have more ideas stolen from me , is similar to something you would read in the “chicken noodle soup for the soul” series of books. If you are not familiar with these books, they are a collection of short personal stories with the purpose of something for everyone. Inspirational and educational.

My idea for this project was that anyone with PKU  , or even friends and family of PKU and maybe even the public will learn from it, find a story to relate to, for PKuers not to feel alone in their journeys and to create more awareness for PKU.

I am choosing to share this information with you all now publicly in hopes of generating more interest and hopefully that more people will come forward and share their stories.

I have high hopes for this project. I feel really great about it and I send a heart felt thank you to all those already participating and to those who have submitted their stories already.

I am hoping to read them all in the next couple days as I battle this stomach flu and get back to you all with feedback.

Please feel free to share this post with anyone that you think may be interested or have them email me for further information.

Also please if you have any questions, comments or would like to partake email me at my personal email adress!

Amandacosburn@gmail.com

 

thank you!

Your pku friend Amanda