Well to my utter shock and dismay, I have not being doing as well as I thought I was with my intake. I have been using my “my pku diet” app for 2 weeks today. I have done mostly ok with it, still entering alot of information manually. I missed 2 days out of the 14. I have been eating alot of my own low protein baking but to my horror, they where not as low as I thought it was.
Let me explain.
I began my efforts to get back on track June 1st with a blood test on June 2nd to see where I was at. That result came back in at 8.0 I was pleasantly surprised , I was expecting higher.
So tonight, I just generated a report of my intake for the past 2 weeks and this is what the graph has informed me of :
June 1st : 896.2 mg phe , 2402 calories
June 2nd : 698.5 mg phe / 2289 calories
June 3rd : 751 mg phe / 2349.9 calories
June 4th : 486 mg phe / 2683 calories
June 5th : 321.3 mg phe / 1678 calories
June 6th : 314.5 mg phe / 2058 calories
June 7th : I forgot to add in my dinner.
June 8th : completley forgot this day.
June 9th : 509 mg phe / 2272 calories
June 10th : 414 mg phe / 1531 calories
June 11th : 798 mg phe / 3090 calories
June 12th : 625 mg phe / 2735 calories
June 13th : 568 mg phe / 2534 calories
I am just in total shock. With intake values like that you would think I am eating really high foods . The only thing I have been really eating are my low protein pizza pops. but multiple pizza pops. And then for dinner low protein pasta salad.
all thought I am so dissapointed and ashamed of myself , doing these records shows me where I am going wrong and where to make changes to get back on track. One thing is for sure. no more multiple pizza pops.
My goal going forward is 350 mg phe / and 1500-1700 calories. AS you can see, this is going to be a huge challange for me to control my portion sizes, to weigh and to track consistently. I am going to have to suck it up and do the hard work of prepping and planning and having more variety. I will be relying heavily on new recipes and increasing my fruits and veggies.
I have never been able to stick to this long enough so all the encouragement and support is appreciated.
Every day is a fresh start right ? a chance to start again and thats what I am looking at today as. Taking it one meal at a time from here on out!
Discover more from I am PKU Strong
Subscribe to get the latest posts sent to your email.

Good luck! I think drinking formula and eating low-protein foods and like you said filling in with fruits and veggies is the best way to go. Here’s some ideas for recipes if it helps! : ) http://meupku.wordpress.com/tag/recipes-2/
I was wondering — I was noticing you have these awesome cycling goals from what you said on facebook. Do you think it will be hard to keep your diet controlled while pursuing biking? It seems like the added exercise might make you more hungry, and it looks like you’re trying to cut back on calories. So that could be tricky. Sometimes I think if we have too many goals at a time (even if they are good ones!) it can make it hard to be successful at any of them. Just a thought!
Good luck! You can do it! I think what you’re doing is very challenging but if you keep at it it will really pay off.
LikeLike