Well I am starting to get back on track with my food records this week and i have figured out where i was so off track and how come I have had a permint headache that never seems to go away. I am way way way off target. I dont think its been for that long though cause I was eating alot of low protein food and pasta last week. This week however I ran out my bagels so i have been eating fruit loops for breakfast than potatoes and corn for dinner. So When I did my records last night I discovered that my past few days have been 722 mg phe, 703.5 mg phe, and even 752 mg phe but all my calories have been under 1600. Maybe cause my i haven’t been eating much but dinner and at dinner having both potatoes and corn at the same time. Plus fruit loops for breakfast. I am so very disappointed and shocked by how high those numbers are. I never even suspected. Thats double where I am suppose to be… so im making my effort over the weekend to bring them down. with the smaller portions and pasta at dinner im very hungry tonight. I did do a little baking today. I made some Maddys yellow cake and some maddys banana muffins. super easy put them on after dinner. All you do is add water and oil. They taste just great too! like real food lol. Really great texture too. I might buy a couple of the yellow cake and make a double layer birthday cake for myself this year. Tastes just as great as a real cake. I love birthday cakes its always been a special treat to get a slice of “real” birthday cake. I love the ones you get from thrifty foods with the cream in the middle. My siblings all like ice cream cake. I never tried any of those or any cake with any chocolate. I do also love angel food cake. .
Im not normally to big on sweets at least I dont eat any regularly. I do however go through phases and im kinda more a cookie fean. I love my low protein cookies by kingsmill. The orange and cinnamon are my favorites. I also love oreos, butterscotch cambrooke cookies, gluten free lemon wafers, and of course short bread! When I am getting cookies in the groceries store i always make sure its at most 1 gram per 2 cookies.
My favorite cookies are the aproten biscotti. I can eat a hole box. They just melt in your mouth!
I normally try to have a couple of boxes on hand of low protein cookies for snacking. Specially on night shifts, as well as for days where I have already most of my intake. They help as a filler.
I am going to plan to do a blood test on Monday I am working Sunday and Monday night so when I do a blood test on a night shift I do it after I wake up before dinner.
I hate the waiting in between though . I will mail my blood test on Tuesday so it wont get test at new born screening laboratory till next Wednesday and then I will have to wait another week for the results.
As an adult when your levels are consistent and in range you are only expected to do a blood phe level once a month and than an annual blood work in the hospital for amino acids and plasma’s . However I choose to do my blood tests at home once a week. It normally keeps me on track and accountable. I also like to be able to see my progress, patterns, and any changes. The range at my clinic is between 2 and 10 for adults. Unless its pre conception MPKU and then range is between 2 and 4 . I personally feel my best when my levels are between 6 and 8. My lowest where in February when I actually got them down to around 3. I don’t think have had them that low since 2006 and I never can keep them that low though. I really don’t eat a lot when they are that low. Up until December I hadn’t even recorded any food records for about 10 years. So needless to say I have come a long way and have begun adapting. Its starting to be come a life style change again. I still dont measure things though. I more just eye ball. I have a scale but ever since I was a kid we always used measuring cups. So I eye ball things in ” cup portions” However I am beginning to wonder about about how accurate I am. So I am working towards that as one of my goals.
So there we have it, a new plan to go forward. hope it goes well. We shall see come monday when I re evaluate.
so untill next time , Happy reading!
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