Well we have arrived in Vancouver for BC PKU 2013 tomorrow!!! we picked up Amanda J at 730 and left Kamloops around 8 am. We arrived in Vancouver at 12 noon. We went for lunch and starbucks then we had our clinic appts. I talked to Taryn my dietican about KUVAN again , and future pregnancy  I learnt some information before that I did not know before. Like when pregnant the babies levels are 1.5 higher than the mothers. This is why they recommend that my levels be 2-4 . As well Cole can be tested to see if he is a carrier but if we dont care if our future baby has PKU then it dosent really matter. There are 2 tests. The first test is not as reliable he would come into clinic and they would load him up with protein ( phe) and take his blood. Or we could pay for a Genotyping tests. This is not covered by medical and costs 800-1000 dollars.  So its ultimately up to cole but he dosent care if the baby has PKU either.  Also There is new information coming out that recommend pku levels should be aimed at 6 mg/dl or 600. 

Also I switched back to bettermilk on Monday and I am so so very happy! Its creamy again and tastes fantastic. They fixed it! So now I am drinking 2 packages with dinner and lunch and my green smoothie for breakfast!  for my 2 pkgs of bettermilk its 23 mg phe and 280 calories.  I am also flavoring it with MIO – its an artifical sweetner made with Surculous and has no PHE, no protein and no calories. There are many diffrent flavors its been great. Last night I had mango, today I had strawberry and the other night I had berry pomagrante. Its going to work out so well for me and I am very happy! 

Also on thursday was my LIVE radio interview in kamloops at 610 AM Radio NL on the Jim Harrison. I was so nervous and I totally screwed up a few senstances with my nerves. I had 8 mintues I got there and went right in!  I have posted the link on my facebook fan page and here on my blog! IF you listen to it please let me know what you think! 

Well thats all for now! i am super excited for the event tomorrow. I will be live tweeting during the event with the hash tag #BCPKUDAY2013.  you can follow me at my handel @Project_PKU 

the event runs from 9 am untill 5 pm. We have a great line up of speakers, diffrent low protein vendors and will be having  a press release at  11 am for the media and some important news in the PKU community. This is not an event I would want to miss ! if you are coming to the event please come by and say hi :) 

Also bring your pennies! we are having a pennies for PKU Drive! 

We are going to head down for dinner soon with Amanda and my friend Claudia may join us. Tomorrow night we are meeting my old friend Olly for a double sushi date! Olly has PKU like me and is the very first person I ever met with PKU when I was 13 years old at my first admission to BC childrends hospital. he was a big influence and a great friend during that hard time of my life. I am looking forward to seeing him :) 

I am so looking forward to not being the only adult attending the event tomorrow! My friend Kim whom I met in 2008 in Victoria at the first walk a thon I held and is also an RN is coming down from Kelowna and a guy a year younger than me,  who just moved here from Ontario.  I am not sure if anyone else is coming but I look forward to finding out! 

I will be the event photographer tomorrow so be sure to check back for photos by the end of the week! 

Sunday morning we head to Victoria to visit my family for a few days! ( that’s a surprise though they dont know yet! )